amyjo

Does anyone else suffer from Lymphedema?

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by , 11-28-2011 at 06:29 PM (1287 Views)
Quote Originally Posted by Daisy144 View Post
I have recently been diagnosed (if that is the correct term) as having lymphedema. It is a problem with the lymph nodes in your body that have stopped working for whatever reason. Many women who have had breast cancer suffer with this problems in their arms. I have it in my legs stemming from a bout with appendicitis when I was 18 months old - starting there then one injury after another accumulating until in my late 40's it became a full blown problem. Unfortunately, I was not diagnosed until my 60's - Thank goodness I have started having my legs wrapped and will be in compression stockings soon. Would like to hear from others that have this problem -
What is lymphedema? Does it mean that your legs are swelling and not getting rid of excess fluid? My leg muscles hurt so bad that I could cry. I do wear Jobst compression thigh high stockings. Don't wear the ones that only go to the knees. Dr said they cut the circulation off at the back of the leg. The first ones I got made my legs hurt even worse. I showed my husband my leg today when we were sitting in the front room. Had a fist size dent in leg and didn't want to go away altho it finally did after about 15 min.
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  1. Daisy144's Avatar
    The lymph nodes are part of the cleaning out system of your body (learned a bunch abt this stuff recently) and when they don't work the fluid (blood, etc) that contains the goop just settles in your extremities (I could get up of a morning with fairly regular sized legs and feel them filling up with fluid as I would walk down the hall to the kitchen) and it has no way to get out. If you think you have this condition you need to talk to your gp and have them refer you to a Lymphedema therapist who will then acurately diagnois you, start you on a regime of massage and wrapping your legs with special ace bandages. They are a real pain in the butt, but after a while you get to like the freedom you receive wearing them. After abt 6 weeks of therapy your therapist will measure you and order special sized compression stockings along with sleep stockings and a massage contrapion that you use for home massages. (I call them my smurf boots except mine are brown not blue) After that you are given a new lease on life - your legs are 5000 times lighter. have to keep it up the rest of your life (with an occasional revisit to the threapist but all in all its worth it. Let me know how everything works out for you.
  2. amyjo's Avatar
    I looked up some information on the internet after I posted this to you and I don't know if I have that, but I sure have one leg that likes to swell up bigger than the other. I have been taking a BP that is supposed to be for fluid. I also wear the jobst stockings. I have a problem in the groin where I had a hernia repaired and I think that is the root of this problem, but don't know what to do about it. Sure don't want another surgery. Where do you live?
  3. Weeser1's Avatar
    Hi Amyjo,
    I hadn't heard of this ,but I suffer from Arthritis .If I spelled that right ? Iam in the northern states also. Did you run accross anything about apple cider vinegar ? It sounds far- fetched but there alot of articles on the internet about it. Iam not sure if there isn't a medicinal value in the vinegar. All I know is a teaspoon in a glass of water helps my pain.
  4. amyjo's Avatar
    I ave some friends who tell me that they take that every day and they don't have any problems. I think mine has gone past the just starting stage where that could help. Of course the weather has a lot to do with how much pain and stiffness I suffer from everyday, but I don't want to live anywhere else. We have low crime and a good economy here at the present time with the oil and such.
  5. nhweaver's Avatar
    I had the same problem with the terrible leg pains and it turned out to be a problem with the statin (chloresterol lowing drugs) and me. I went off the statins and the pain went away. Do you take any statins. Search out the issue on the internet, get educated about this serious complication and If you do, tell your doctor immediately about the leg pain. I have had lymph nodes removed after sarcoma surgery, and have lymphedema in my lower stomach. I have a little tea pot belly on top of the extra ice cream bulge.
    Quote Originally Posted by Daisy144
    The lymph nodes are part of the cleaning out system of your body (learned a bunch abt this stuff recently) and when they don't work the fluid (blood, etc) that contains the goop just settles in your extremities (I could get up of a morning with fairly regular sized legs and feel them filling up with fluid as I would walk down the hall to the kitchen) and it has no way to get out. If you think you have this condition you need to talk to your gp and have them refer you to a Lymphedema therapist who will then acurately diagnois you, start you on a regime of massage and wrapping your legs with special ace bandages. They are a real pain in the butt, but after a while you get to like the freedom you receive wearing them. After abt 6 weeks of therapy your therapist will measure you and order special sized compression stockings along with sleep stockings and a massage contrapion that you use for home massages. (I call them my smurf boots except mine are brown not blue) After that you are given a new lease on life - your legs are 5000 times lighter. have to keep it up the rest of your life (with an occasional revisit to the threapist but all in all its worth it. Let me know how everything works out for you.
  6. amyjo's Avatar
    I don't take any cholesterol reducing drugs, but I do take pain meds. I also take a med at nite that is to make my muscles relax. I also take a fluid pill. will look them up and see what I find. I do have a friend who has this condition. she had sugery this past summer and had drains put in and then she got some big infection and they took them out. she said they don't have anyone specialized near where she lives to have them massaging and wrapping done. she is supposed to be wearing some compression stockings, but don't know if they are working properly. She weighed in at well over 550 lbs and has had gastric bypass, then a hernia on her stomach that was repaired and I don't know what all else she is dealing with now. Thanks, Amy

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