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Thread: Doll to a sick child....

  1. #1
    Super Member wordpaintervs's Avatar
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    Doll to a sick child....

    This is a story type thing about Adrianna Martinez who got doll number 80, of the dolls i make and give away to very very very sick children. Right now, Adrianna has just had her 3rd birthday and is a happy child. She takes at least 13 pills every day and will for a long time if not forever to prevent the 3 organs from rejecting from her body. She loves the doll, especially that it is the size she is and flip flops to become a sleepy doll with a sleepy smiling face. Her mother has given me permission to post her story and her picture. If I can get the pictures to come up, you will see her as the recovering baby in her walker/roller, theanother one taken 2 years after her surgery. The article says 1 year, but I think that is post recovery as the mother says 3 months at the time of surgery. Good article and heart warming story I hope you will like. The surgery was in 2009 at the Tucson Arizona University hospital.

    Vickey S.


    Baby Receives a Three-Organ Transplant at University Medical Center
    TUCSON, Ariz. – A 1-year-old girl from the Phoenix area successfully received a three-organ multi-visceral transplant as part of a single surgical procedure on Nov. 9 at University Medical Center – the first procedure of its kind performed in Arizona and the Southwestern United States. The liver, small bowel, and pancreas from a deceased baby donor were transplanted “en bloc” (kept together as a single unit) in the seven-hour operation, a complex procedure that is rarely performed and requires superb logistical, surgical and medical coordination.
    The patient, Adrianna Martinez, was born without a small bowel, a rare congenital malformation that makes it impossible to digest food. With total parenteral nutrition (TPN), babies can survive by receiving most or all of their nutrition directly into the blood stream, but for reasons that are not completely clear, TPN also can lead to liver failure. She also was born with situs inversus – her abdominal organs were positioned on the wrong side – making her condition even more complex.
    A family friend had agreed to donate part of his bowel and liver, but the day before the scheduled surgery surgeons were notified that whole organs from a deceased baby donor had become available.
    “By transplanting all three organs at once, we can give children with these serious intestinal diseases hope for a healthy future,” said Rainer Gruessner, MD, professor and chairman of the UA Department of Surgery and chief of transplantation at UMC. Dr. Gruessner was recruited to the UA and UMC in 2007 from the University of Minnesota. He is an international leader in abdominal transplantation who standardized the technique for living donor intestine transplants.
    The transplant team included surgeons Dr. Gruessner, John Renz, MD, PhD, professor of surgery and vice-chief of abdominal transplantation, and Tun Jie, MD, assistant professor of surgery. The medical team included Khalid Khan, MBChB, MRCP, professor of surgery and a gastroenterologist specializing in pediatric liver and intestine transplants, and Thomas Boyer, MD, professor of medicine and director of the Arizona Liver Institute at the UA College of Medicine.
    Dr. Renz procured the organs from an out-of-state hospital and oversaw the timing of the donor and recipient operations critical to the procedures’ overall success.
    UMC is the only comprehensive pediatric transplant program in the Southwest, said Nance Conney, director of the UMC Transplant Program. The program includes dedicated specialists in pediatric surgery and transplantation; pediatric gastrointestinal medicine and nutrition; advanced-practice nursing; and child life and social support services. This range of services, essential to helping these children and their families cope with these overwhelming health problems, only is available at a few leading transplant hospitals in the nation.
    In addition to a long history of heart, lung, kidney, pancreas and liver transplants, the UMC Transplant Program performed its first living-donor and first deceased intestine transplants for small bowel syndrome and first auto-islet cell transplants for chronic pancreatitis earlier this year.
    Dr. Gruessner said the first year will be critical to Adrianna's survival, but so far she is doing well. The survival rate for this type of procedure is about 65-70 percent during the first year. “When these children survive the surgery and the first two months post op and do well, they can do very well long-term,” he said.
    Last edited by wordpaintervs; 02-19-2012 at 09:11 PM. Reason: typos
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  2. #2
    Super Member wordpaintervs's Avatar
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    I am sorry that I cannot figure out how to post sweet Adrianna's pictures. If you wish to see them, please send me a pm and I will send you her picture.

    Thanks.

    Vickey S.
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  3. #3
    Super Member JanTx's Avatar
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    Vickey
    reply to this thread
    under the reply box click on "Go advanced"
    In that window find "Manage attachments" and click on that blue box
    Click on browse.
    When you get to a list of pictures click only once until the picture you want turns blue. (It will look like: image028 unless you have renamed it.)
    then BEFORE you try to add it to this post RIGHT click on it and choose "edit". In the new window that pops up find "resize" which will be on the far left. Click the bullet that says "pixels" and change the top number to 750. The bottom number will automatically change to what it should be. Find the save icon on the top far left and close that box.
    NOW double click on that same picture in your list and it will be in your box next to "browse". Find the word "Upload" and let it do it's thing. When it says upload complete - or shows you the image number in blue font then you have added a pic to this thread. It's really not as complicated as it sounds. WHen you've done it a time or two it will be easy.
    Good luck. I've seen pictures of many of your dolls and would love to see this one.
    So many quilts, so little time.

  4. #4
    Super Member wordpaintervs's Avatar
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    Adrianna Martinez recovering from triple transplant in 2010

    hope this first pic downloads
    Attached Images Attached Images  
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  5. #5
    Super Member wordpaintervs's Avatar
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    Adrianna 2 years after the transplant

    here is the doll Adrianna got just last Tuesday and a few months after her 3rd birthday
    Attached Images Attached Images  
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  6. #6
    Super Member wordpaintervs's Avatar
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    Addriann and/or doll with nightgown view

    sorry, Adrianna's picture didn't come up. I'll try again. You may only get the nightgown part of the doll.

    Vickey
    Attached Images Attached Images  
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  7. #7
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    Thank you for sharing Adrianna's story. I am happy to learn she is doing so well. This is the power of prayer. You are a beautiful person to make dolls for the sick kids.

    The current picture of Adrianna is precious and your dolls are just too cute.
    Last edited by BETTY62; 02-19-2012 at 09:59 PM.
    Fabric is like money, no matter how much you have it's never enough.

  8. #8
    Super Member wordpaintervs's Avatar
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    Andrianna's doll (nightgown view)

    In the other picture, Adrianna is 3 years old. She must take pills (several each day) because of the transplant. What a brave sweet girl.

    Hope you enjoy seeing who got the 80th doll.

    God Bless you and yours

    Vickey S.
    Attached Images Attached Images  
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  9. #9
    Super Member wordpaintervs's Avatar
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    Thanks so much for the reply Betty62. God Bless!

    Quote Originally Posted by BETTY62 View Post
    Thank you for sharing Adrianna's story. I am happy to learn she is doing so well. This is the power of prayer. You are a beautiful person to make dolls for the sick kids.
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

  10. #10
    Super Member wordpaintervs's Avatar
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    Thanks so much for your help so I was finally (although I didn't do the greatest job of it) get to show you the two of Adrianna plus the two versions of the doll she is learning to love. God bless and thanks again.

    Quote Originally Posted by JanTx View Post
    Vickey
    reply to this thread
    under the reply box click on "Go advanced"
    In that window find "Manage attachments" and click on that blue box
    Click on browse.
    When you get to a list of pictures click only once until the picture you want turns blue. (It will look like: image028 unless you have renamed it.)
    then BEFORE you try to add it to this post RIGHT click on it and choose "edit". In the new window that pops up find "resize" which will be on the far left. Click the bullet that says "pixels" and change the top number to 750. The bottom number will automatically change to what it should be. Find the save icon on the top far left and close that box.
    NOW double click on that same picture in your list and it will be in your box next to "browse". Find the word "Upload" and let it do it's thing. When it says upload complete - or shows you the image number in blue font then you have added a pic to this thread. It's really not as complicated as it sounds. WHen you've done it a time or two it will be easy.
    Good luck. I've seen pictures of many of your dolls and would love to see this one.
    "Greater is He that is in me, then he that is in the world"

    www.dollsforverysickkids.com

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