Has anyone here had this?

Old 05-30-2011, 06:09 AM
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My daughter has acute rheumatic fever and is not doing well at all. I would like to know if anyone here as had this so I can ask some questions about their experience. She is in so much pain she can't even function. The cardiologist just says it will take time. But I'm wondering if there is something else going on here. Any comments will be appreciated. Thanks
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Old 05-30-2011, 06:11 AM
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Sorry to hear this. Have you done a google search?
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Old 05-30-2011, 06:12 AM
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I cant help..but i can pray all goes well.
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Old 05-30-2011, 06:16 AM
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Originally Posted by isnthatodd
Sorry to hear this. Have you done a google search?
Yes...everything is very simply explained. She is getting over the infection. Her strep antibody number went from 880 to 412 but she still has a ways to go. The CRP number also went down a little. I guess this all will just take time but I hate to see her suffer. She can barely get out of bed and this has been going on for 6 months!! She had to drop out of high school because of it. :cry:

I asked the cardiologist about going to a rheumatologist and he was ok with it but thought it wasn't needed. I just want my old Darcy back
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Old 05-30-2011, 06:24 AM
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Originally Posted by mzsooz
Originally Posted by isnthatodd
Sorry to hear this. Have you done a google search?
Yes...everything is very simply explained. She is getting over the infection. Her strep antibody number went from 880 to 412 but she still has a ways to go. The CRP number also went down a little. I guess this all will just take time but I hate to see her suffer. She can barely get out of bed and this has been going on for 6 months!! She had to drop out of high school because of it. :cry:

I asked the cardiologist about going to a rheumatologist and he was ok with it but thought it wasn't needed. I just want my old Darcy back
Trust your instincts and accept the specialist's appointment. You need to advocate for your daughter. There's never anything wrong in getting a second opinion, to validate ... or to uncover further info regarding her condition.
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Old 05-30-2011, 06:28 AM
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Time is the ultimate healer but have you tried a anti-inflammatory diet? By eating foods that reduce the inflammation it will help reduce the pain. My sister has systemic psoriasis and has psoriatic arthritis as a result. The diet really helps her.

Here is a link with some recipes: http://www.epicurious.com/articlesgu...tiinflammatory
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Old 05-30-2011, 07:06 AM
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No experience with it, but you both are in my prayers.
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Old 05-30-2011, 07:50 AM
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Sorry, no experience. Depending on what kind of pain it is, something like Emu oil or Mobisyl might help. Emu oil has anti-inflammatory properties and both help with certain kinds of pain.
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Old 05-30-2011, 07:59 AM
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so sorry...definitely go for the second opinion w/ the specialist...for sure wont hurt anything...
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Old 05-30-2011, 08:10 AM
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Sometimes it takes many specialists before you get the right one. if you feel something is not right then it's not.
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