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Thread: News on Kennedy Joiner

  1. #1
    Super Member tslowery's Avatar
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    Here is a article done by the Savannah Channel WTOC if you go to this link you can see the interview and Kennedy. THanks to all of you for your kindness and prayers. Teresa http://www.wtoc.com/global/story.asp?S=10433447

  2. #2
    weste's Avatar
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    God love her. She sure has been through alot. I feel so bad for her.

  3. #3
    Moderator tlrnhi's Avatar
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    WOW! What a story and such a brave little girl!

  4. #4
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    It always amazes me how patient and accepting kids are when they have serious illnesses. Most adults are hard-pressed to exhibit the "grace under pressure" that children do all the time. Kennedy sounds like a sweetie, and I am really happy I can contribute to her quilt!

  5. #5
    Power Poster MadQuilter's Avatar
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    Hope our quilt makes lots of money :D

  6. #6
    Power Poster amma's Avatar
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    Kennedy is such a precious little girl, to go through so much in her lifetime and have such a wonderful outlook. In reading through all of the stories about her she is an awesome inspiration!!!

  7. #7
    Super Member tslowery's Avatar
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    Thanks for all of your prayers and help it is much appreciated. SHE is an awesome and sweet little girl.

  8. #8
    Super Member PurplePassion's Avatar
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    Teresa; is there any updates on Kennedy? Did she have surgery? Elaine

  9. #9
    Super Member Feathers's Avatar
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    A child's ability to COPE amazes me whenever I read or see a story like Kennedy's. She was dealt a hard hand in life and is making the most of it. Good for her and prayers for her.

  10. #10
    Community Manager PatriceJ's Avatar
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    quoting tslowery:

    Here is the latest email I recieved from Ginger on Kennedy.......

    Subject: 7/20/09 trip to MCG

    There has been no update on the Wake Forest procedure. The FDA is still going through all of the data from their previous test on the 6 subjects that were on a 2 year study. Therefore the growing of the bladder has not begun and a surgery date has not been obtained.

    Kennedy’s visit to the doctor in Augusta on 7/20/09 was to determine whether or not her doctor felt that we should go ahead and expand her bladder size (using a 20cm section of intestine) Kennedy's bladder doesn't grow but her kidneys need relief from helping the bladder with storage of the urine.

    The ultrasound on her kidneys was great news showing that the hydronyphrosis (swelling in the kidneys and ureters) was way down. This was great news. This is because she wears the leg bag that keeps the bladder empty (which helps the kidneys to be able to empty)

    Dr. D has decided (with my input) that we will continue with the urine leg bag and suprapubic tube until January in hopes that Wake Forest will have news.

    Hope you all are well and thank you so much for the support that you all continue to give for Kennedy.

    We are on day 21 of the "31 days of prayer for Kennedy's specific needs" Please continue to pray.

    ------------
    for future updates, please consult tslowery's diary.

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