News on Kennedy Joiner
05-28-2009, 08:38 PM
#1
Super Member
Thread Starter
Join Date: Feb 2009
Location: GA Small town in Southeast Ga
Posts: 1,056
Here is a article done by the Savannah Channel WTOC if you go to this link you can see the interview and Kennedy. THanks to all of you for your kindness and prayers. Teresa http://www.wtoc.com/global/story.asp?S=10433447
05-29-2009, 04:00 AM
#2
Junior Member
Join Date: Apr 2007
Location: weste
Posts: 179
God love her. She sure has been through alot. I feel so bad for her.
05-29-2009, 04:01 AM
#3
Moderator
Join Date: Jan 2007
Location: In the middle of a mess...
Posts: 20,025
WOW! What a story and such a brave little girl!
05-29-2009, 06:30 AM
#4
Banned
Join Date: May 2009
Location: Houston, TX
Posts: 7,286
It always amazes me how patient and accepting kids are when they have serious illnesses. Most adults are hard-pressed to exhibit the "grace under pressure" that children do all the time. Kennedy sounds like a sweetie, and I am really happy I can contribute to her quilt!
05-29-2009, 09:15 AM
#5
Power Poster
Join Date: Mar 2009
Posts: 15,639
Hope our quilt makes lots of money :D
05-29-2009, 09:25 AM
#6
Power Poster
Join Date: Jul 2007
Location: Out searching for some sunshine :-)
Posts: 58,856
Kennedy is such a precious little girl, to go through so much in her lifetime and have such a wonderful outlook. In reading through all of the stories about her she is an awesome inspiration!!!
05-30-2009, 08:58 AM
#7
Super Member
Thread Starter
Join Date: Feb 2009
Location: GA Small town in Southeast Ga
Posts: 1,056
Thanks for all of your prayers and help it is much appreciated. SHE is an awesome and sweet little girl.
07-20-2009, 06:54 AM
#8
Super Member
Join Date: Mar 2007
Location: Southern MN
Posts: 2,376
Teresa; is there any updates on Kennedy? Did she have surgery? Elaine
07-20-2009, 09:36 AM
#9
Super Member
Join Date: Apr 2007
Location: Pacific NW
Posts: 3,007
A child's ability to COPE amazes me whenever I read or see a story like Kennedy's. She was dealt a hard hand in life and is making the most of it. Good for her and prayers for her.
07-22-2009, 01:20 AM
#10
Administrator
Join Date: Nov 2006
Location: Southeast Georgia, USA
Posts: 9,096
quoting tslowery:
Here is the latest email I recieved from Ginger on Kennedy.......
Subject: 7/20/09 trip to MCG
There has been no update on the Wake Forest procedure. The FDA is still going through all of the data from their previous test on the 6 subjects that were on a 2 year study. Therefore the growing of the bladder has not begun and a surgery date has not been obtained.
Kennedy’s visit to the doctor in Augusta on 7/20/09 was to determine whether or not her doctor felt that we should go ahead and expand her bladder size (using a 20cm section of intestine) Kennedy's bladder doesn't grow but her kidneys need relief from helping the bladder with storage of the urine.
The ultrasound on her kidneys was great news showing that the hydronyphrosis (swelling in the kidneys and ureters) was way down. This was great news. This is because she wears the leg bag that keeps the bladder empty (which helps the kidneys to be able to empty)
Dr. D has decided (with my input) that we will continue with the urine leg bag and suprapubic tube until January in hopes that Wake Forest will have news.
Hope you all are well and thank you so much for the support that you all continue to give for Kennedy.
We are on day 21 of the "31 days of prayer for Kennedy's specific needs" Please continue to pray.
------------
for future updates, please consult tslowery's diary.
Here is the latest email I recieved from Ginger on Kennedy.......
Subject: 7/20/09 trip to MCG
There has been no update on the Wake Forest procedure. The FDA is still going through all of the data from their previous test on the 6 subjects that were on a 2 year study. Therefore the growing of the bladder has not begun and a surgery date has not been obtained.
Kennedy’s visit to the doctor in Augusta on 7/20/09 was to determine whether or not her doctor felt that we should go ahead and expand her bladder size (using a 20cm section of intestine) Kennedy's bladder doesn't grow but her kidneys need relief from helping the bladder with storage of the urine.
The ultrasound on her kidneys was great news showing that the hydronyphrosis (swelling in the kidneys and ureters) was way down. This was great news. This is because she wears the leg bag that keeps the bladder empty (which helps the kidneys to be able to empty)
Dr. D has decided (with my input) that we will continue with the urine leg bag and suprapubic tube until January in hopes that Wake Forest will have news.
Hope you all are well and thank you so much for the support that you all continue to give for Kennedy.
We are on day 21 of the "31 days of prayer for Kennedy's specific needs" Please continue to pray.
------------
for future updates, please consult tslowery's diary.
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