Quilt Retreats and Fibromyalgia
#1
Super Member
Thread Starter
Join Date: Mar 2007
Location: Lansing, MI
Posts: 1,038
Just wondering if anyone who has Fibro has gone on a quilt retreat. Specifically, how did you handle your pain while trying to sew, etc. for 2+ days. Were you actually able to enjoy the weekend?
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
Thanks for any input.
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
Thanks for any input.
#4
Super Member
Join Date: Nov 2010
Location: MS
Posts: 2,624
I sometimes have to go to a event for a couple of days and I am constantly busy while there. I pace myself leading up to the event. If I have to drive, I allow time to stop and walk around. I take my own pillows (a bunch of small ones) to prop various parts of me up and I increase my pain meds just a little. I have a pillow I use while I'm "busy" and I make sure to get up and walk around every little bit and do a little stretching especially doing repetitive work. I make it thru and when I get home, I crash for a day or 2. I can't stop the pain while I'm at the event and always pray that I'm not in a major flareup. But these little "preparations" help me thru and I can enjoy the event while I'm there. My doctor gave me little exercises to do if I have to sit, stand or drive too long. And don't be shy if you have to stop and rest...otherwise it wouldn't be known as a retreat!
#7
Super Member
Join Date: Jan 2007
Location: western Pa.
Posts: 2,221
Just go and have a good time. Try not to think of the pain, you will have such a good time that maybe it will be like therpy for you. Take the most comfortable clothes and foam bed topper.
Go have fun. Drink lots of wine.
Go have fun. Drink lots of wine.
#8
I don't have fibromyalgia, but have been on several retreats that use "those dreaded camp beds" :-). Several people bring some type of foam memory topper and/or an air mattress (either a thin one to use on top of the bed or a nice thick one to put on the floor next to the bed). Also - most people bring some type of cushion(s) to use and some even bring their own chair from home. I don't know if any of these cushions/toppers were from fibromyalgia or just plain comfort, but they're an idea if they help.
#9
Originally Posted by Kehoeta
I'm planning on going to the Lake Huron retreat also. If it would help, I can drive.. I have a Tahoe, so it is comfortable for longer trips and for most passengers.
PM me if you are interested.
PM me if you are interested.
#10
If I was in my 50's, I would go... bringing all my comforts with me. But I'm in my 60's now, and absolutely would not... I'm much happier and more comfortable at home where I can rest, work, rest in 15 minute intervals....... but that's just me.. Maybe you should try it once, so you'll know next time a retreat comes up..
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