Rhonda

Jamie I went online and there is a Compass site that may have programs that may help you and your family. Th problem with some of these programs it takes time to get through the red tape.
I suggest you look at it yourself and see if there is anything that might fit your situation. If they do not have anything that works for you I would call and talk to someone there and they may be able to point you to the right offices that can help. There is always help out there it is just a matter of finding it.
We have a Compass here in Iowa that has helped me and my daughter with answering questions and finding people to help.

It is a place to start anyway!

https://www.humanservices.state.pa.us/compass/CMHOM.aspx]https://www.humanservices.state.pa.u...ass/CMHOM.aspx[/url]

amma

Jamie, your daughter will probably be taking a step forward and 2 steps back for a while...and this is a normal thing that happens...hang in there, she sure sounds like a fighter, you all are in my prayers!!

I would call the caseworker first thing in the morning and ask him to please call you ASAP and then maybe you can get some questions answered by phone. Also find out if you can make an appointment during the times you can get to the hospital. They should be able to tell you if there is a Ronald McDonald house close, if there are funds to help with travel, call your local Social Service office, too. Keep asking each place, if you can't help me, do you know of anyone else that can. Here we have a poorly advertised number that has info on most all county, city, state and federal agencies, we dial 211. Check that number in your area, see if it works.

kwhite

Amma Ronald McDonald house was going to be my suggestion too. Local Churches and the red cross or salvation army maybe.

And Jamie your case worker is there for you. Don't worry about catching him when he isn't busy. Let him or her worry about how he will fit you in.

Ninnie

I was also thinking Ronald MCDonalds house. Every large hospital has programs , you just have to make them listen to you! Also neighbors, let them know what you are going through. Morgan's friends families and her teachers from her school. A lot of people will be glad to help, you just have to ask. Still keeping you both in my prayers.

zyxquilts

You have many ideas to work on now...I am sending Morgan & you & your family strength & healing energies & hugs.

sharon b

Another thing to start on right away and you can do it from home is apply for social security for her, the disability program. Also as others have said the Ronald McDonald house. Also start calling your congressperson and senator, they all have help lines that can help you, guide you and offer assistance. They also should have contact info on the internet, but you might have better luck calling and talking to them. Believe it or not they all have specific staff to help individuals with their problems, so use it.
{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}

And believe in the power of positive thinking, even when it seems so hard. When my brother had a tumor on his brain explode (?) he spent weeks in the intensive care and months in rehab and was told he would never walk again, but eventually he took a few steps. Sorry so long
Sharon

beachlady

Jaime, I have no suggestions other than what others have said. But please know that I am thinking of you and praying for you and so wished I lived closer so I could help you out!

I can't imagine going through what you are with Morgan.

Jaime, could you please PM me your address? Thanks!

kwhite

I would like Jamies Addy too if anyone has it.

Shemjo

Do you belong to a church? Ask there. The school is another good place to ask for help.
My heart aches for you and all you are going through right now. Praying for you and sending positive energies to you all.

Piedmont Quilter

Jamie ~ I agree with everyone else. Rely on your family and friends. Tell them what you need ~ don't wait for them to ask. What about your husband's family? This is a part of their life too. Oh how I wish I was closer!!! I continue to pray for your Morgan, and now know specific needs that I can pray for.

Big >>>>> coming your way.

Rebecca