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My husband has these, he recently visited the VA and they tell him there is a medication that will help, if you e mail me privately, I will give you the name. As for cutting, perhaps the Accuquilt would be a good answer for you although I personally do not like it I can see where it could be a real plus for someone with your condition as I see what my husband struggles with on a daily basis, he has had them for about 10 years.
Pat |
beckalu
I do not have ET but may I suggest you investigate patterns that don't require lots of cutting. They may not be your first design choice but would help you stay independent. What comes to mind are quilts for which you RIP the pieces: First, consider 'strippies' made with multiple full lengths or widths of fabric. By carefully selecting prints/stripes/checks/solids you could compose attractive tops. Second, Amish Bars or square-in-square made with large pieces; how about a one-block log cabin or giant pineapple. Third, log cabin or other string patterns. If you feel these are too narrow to 'rip' this is where a helper could quick cut loads of strips. Fourth, machine crazy quilting utilizing scraps "as is". I bet lots of quilters can think of patterns that are not so tedious to cut. While proof-reading I had another thought--if you shop at a LQS, explain your predicament. They could (IF they're careful and willing) cut your purchases in strips right off the bolt which would save you some cutting. |
I have a friend with the same problem. She has had tremors all of her life, but they definitely are worsening. She does all the things suggested above and sometimes I help her too. She has considered the brain surgery that was suggested, but not terribly excited about the proceedure. She just told me that they have put her on a new medication that is helping and she is doing better. Good luck to you.
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Originally Posted by turner0106
(Post 5941415)
Maybe your husband, or if you have kids that are grown, a friend that could help. Or the accuquilt might be a good option.
I wish some of the local quilt shop owners would have the acuquilt and people pay a fee to go in and use it. Kinda like the Long arm. That way people don't have to buy the machine and then all of the cartridges to do a project. |
Since you have a tremor that increases with intent maybe somehow you can figure out how to have your cutting hand/arm at rest when cutting. If you have ever seen a painter making letters on a project you might have noticed he rested his painting arm on top of his "resting" arm; he uses the resting arm as a brace decreasing the chance of shaking while trying to make a straight line. Perhaps you could "rest" your cutting arm on the cutting mat and this would lessen the shaking enough for you to continue to cut your own pieces. Good luck. Stay safe.
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I've enjoyed this discussion with so much info about tools, meds, and work-arounds. It's amazing the knowledge and willingness to share represented here.
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Originally Posted by beckalou
(Post 5940450)
I have a disease called Essential Tremors, the symptoms resemble Parkinsons Disease. My hands tremble uncontrollably only when I am trying to eat, cut veggies, cook, etc. When I am at rest, they are fine. I am finding it increasingly harder to cut my fabric using the rotary cutter. I am so afraid of cutting myself, and plan on purchasing a pair of Klutz Gloves to protect my hands. I know that eventually the tremors will become worse as it is a progressive disease.
My question: Is there anyone else on this board who has similar issues, and how do you get around the process of cutting your fabric. Hubby has eyesight issues, so he really can't help. |
Originally Posted by misseva
(Post 5944012)
susanprincess - it's not the same brand as fiskars is it?
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If I lived near you I would help you out if I could. We are all God's earth to help others (my belief anyway). I know you said you like to do your own cutting. Maybe a grandchild or would there be a 4-H group in your town who would want to do something like that for a community service project or just to help someone out? When my youngest daughter was in high school, she read the weekly newspaper into a tape recorder and then mailed the tapes to the legally blind people in our community. She has been out of school for 13 years and of all those she read for only 1 is left. They all remembered her on her birthday and at Christmas with little homemade things that they made to pass time and she still has them. They are some of her most prized possessions. God Bless. Amy
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There are medications to help control the tremor (I have it too an have taken a variety until my doctor was able to balance things out.) I have found that pressing my elbows into my sides while I am using my hands certainly helps. I do my cutting when my medications are at a peak controlling the tremor. It is never gone completely but better. I am no longer able to write and use the computer to communicate with family and friends. My signature is terrible but more legible than my doctor's is (LOL) Good luck in working with your doctor to find the best combinations for you. You may PM me if you want more details. Donna
Originally Posted by beckalou
(Post 5940450)
I have a disease called Essential Tremors, the symptoms resemble Parkinsons Disease. My hands tremble uncontrollably only when I am trying to eat, cut veggies, cook, etc. When I am at rest, they are fine. I am finding it increasingly harder to cut my fabric using the rotary cutter. I am so afraid of cutting myself, and plan on purchasing a pair of Klutz Gloves to protect my hands. I know that eventually the tremors will become worse as it is a progressive disease.
My question: Is there anyone else on this board who has similar issues, and how do you get around the process of cutting your fabric. Hubby has eyesight issues, so he really can't help. |
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