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Thread: Alzhiemer's - Caregiver - Help

  1. #1
    Super Member LeeAnn's Avatar
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    I'm currently caring for my precious MIL who is in advanced stages of Alzhiemers. She is 81 and the most incredible lady I've ever known. She never complains and always has a smile. I care for her 3 days per week and know that 3 will soon turn to 5 or more. She asks the same questions repeatedly and has problems finding her way around in her own home. She is unable to bath herself but she still feeds herself. She loves to watch me sew or crochet and comments over and over how lovely it is, even though she has lost most her vision. She occasionally threatens me with a switch if I don't sit next to her and sew. My FIL is 86 and also suffers from Alzhiemers, his isn't advanced as hers. I want to know if you have been in this situation and what has worked for you and your patient or family member. Tips or hints that might make her life easier.

    I guess my question is what are the last stages and what can I expect? If you've been through this with a loved one what was it like for you? Thanks in advance for all replies.

  2. #2
    Super Member sewwhat85's Avatar
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    may god be with you

  3. #3
    Power Poster Sadiemae's Avatar
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    My thoughts and prayers are with you. I can't answer your questions because my Grandmother was in a care facility until she passed, but I do know how difficult it is.

  4. #4
    leonajo's Avatar
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    this runs thru my family. we get it while we r young , early 50's.
    ask them stories about when they were young , ask them anything u might ever wanta know.just let them feel loved. it hurts u, not them, they will just fade away. healthy bodies live a long time. God Bless u and ur family.

  5. #5
    Power Poster sueisallaboutquilts's Avatar
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    LeeAnn, Go to Betty62's topics. She posted one on the same thing and got some wonderful tips.
    You sound like a beautiful soul :)

  6. #6
    Senior Member pstoner's Avatar
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    I am also a care giver to my MIL, although she doesn't have Alzhiemer's diagnosis, she is starting to show tendancies towards it (she is also 81, but is alone FIL passed 6/14/08 during the flood), and contrary to belief, I love her (actually she has been more of a mother than my own). She can no longer bath herself, but does her own cooking, albeit frozen dinners (meals by Elder services), she doesn't do any shopping, but can fold her own laundry if we sort it for her. We do her housework, because it is much to difficult for her to try and use the vaccum or scrubbing the floors. I just wish she would call if she needs something instead of waiting, other DIL shares the duties with me, and sometimes forgets to set up MIL meds, so MIL went without until we just happended to stop by.

    My Grandmother had it and from what you are describing, she (your MIL) isn't in the late stages of the disease. My GM got to the point where she reverted back (couldn't comprehend that her daughter, had adult children or grandchildren), which was very hard because she and I were very close all the while I was growing up. It was diffucult when she could no longer remember even her own children.

    I applaud you for caring for them. Look for a local support group, for both you and your DH, there are many that assist in helping with the symptoms, the caregiver, and what to watch for. They are very helpful, hopefully you have someone to sahre this work with you so that you get a break it you need one.

  7. #7
    Senior Member pinecone's Avatar
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    Quote Originally Posted by sueisallaboutquilts
    LeeAnn, Go to Betty62's topics. She posted one on the same thing and got some wonderful tips.
    You sound like a beautiful soul :)

    http://www.quiltingboard.com/t-85625-1.htm

    I was caregiver to DMIL for 7 years, bless you. It is a long journey. I will respond more on the other thread.

    piney

  8. #8
    Power Poster sueisallaboutquilts's Avatar
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    Thanks, piney. I still haven't figured out how to do that!

  9. #9
    Super Member mom-6's Avatar
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    It seems to vary from person to person how it affects them, but it is pretty much a gradual decline with good days and bad days all along, with eventally the bad days being almost every day, but I know my dad still had an occasional good day even the last month before he passed on. Some people seem to have repeated strokes or seizures, but that doesn't seem to be the case with others.
    My aunt seemed to have a much greater degree of memory loss early on, while my grandfather and my dad had more of a tendancy to revisit the past, but still recognize us the rest of the time and be able to carry on a conversation.
    My friend's sister who developed it very early in life (before she turned 50) had multiple seizures associated with hers and lost the ability to eat on her own fairly early as well.
    The main thing is to love 'em, humor their idiosencricies (sp???), keep them comfortable, and take good care of yourself. When you find that you need help in caring for them, don't hesitate to ask for it. There's plenty available, from many different sources - family, friends, churches, local agencies of various types, etc. If you become a sole caregiver, be sure to get someone to relieve you periodically, even for a few hours daily or weekly, for the sake of your health(and sanity).

  10. #10
    Senior Member cashmommy11's Avatar
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    i worked in a home for alzheimers if you would like to call me for info just pm me and i will be happy to give you my number..i was trained by the alzheimer association

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