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Thread: Lyme Disease

  1. #41
    Super Member karenm36's Avatar
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    Quote Originally Posted by doll-lady
    what kinds of symptoms do you have from lyme disease. i ask because i found a tick embedded and had died on my shoulder. i dug it out and then a month or so later, i woke up one morning with all ten toes and part of my feet completely numb. it was sunday so waited until monday and they thought i may have ms. they gave me some medicine for several days and it helped the symptoms but they didn't go away completely. they sent me to a neurologist and he did some tests for the ms but not the one that would really tells for sure so we just ended up and dropped it for the time being. i had gotten better but still have numbness in my toes and feet and hands. it is manageable so far. the doctors told me it was too late to test for the lyme disease. it has been 3 years and i am better than i was to begin with but still have numbness. they say i don't have diabetes, that their best guess is i have a virus and that they hope the symptoms will eventually go away but that they just don't know, that it might not.
    My understanding is that it is NOT too late to be tested for Lyme Disease. I have a friend who had it undiagnosed for years. She had terrible complications and nearly died. Finally someone suggested she be tested for Lyme disease...and it was positive! Treatment is more intense when it's been in your body so long and she had a whole bunch of other co-infections because of it's duration but she is slowly improving. If you're not getting the testing you need then see if you can find another physician who specializes in diagnosing and treating it. It will only get worse if that's what you have. Good luck!

  2. #42
    Super Member Carron's Avatar
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    Oh you poor thing. Hope you get better fast.

  3. #43
    Super Member Leota's Avatar
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    Oh Kookie... I'm so sorry you have this...
    Please take care..
    One of the things I read about being "in the wild" is to tuck your pants into your socks (wear knee high and wear gloves that go over the cuff of you shirts... I know in the summer heat to wear long sleeves and long pants is torture but it prevents the buggers from getting on your skin as easily

  4. #44
    Dee
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    Super Member Dee's Avatar
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    So sorry to hear this. Hope you feel better soon.

  5. #45
    Member Dixiejar's Avatar
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    Dear Kookie,
    I had Lyme disease in 1992 from a tick bite. Be sure you stay on your meds for at least a month. Unfortunately there are no accurate tests to determine if you are completely free of the Lyme spirochetes. Blood tests are not accurate because the spirochetes invade tissues and do not stay in the blood stream.
    This research link will help you understand the illness. I continue to research Lyme because I still have lingering symptoms and have test positive for the antibodies. You can cut and paste this link into your browser.
    http://www.lymenet.org/BurrGuide200810.pdf
    I pray you have a complete recovery and can enjoy quilting for many years.
    Sincerely,
    JoAnn Taylor Rice

  6. #46
    Super Member nwm50's Avatar
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    Wow...this was some deep, interesting topic to read and im going to make sure i ck'd all my grandchildrens who comes to the family farm for any tick upon entering the house! So sorry for all who had complications from these bites and improving now.

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