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Old 08-30-2010, 06:52 PM
  #23  
Aussie Quilter
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Join Date: Jul 2009
Location: SE Qld. Australia
Posts: 271
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See if you can get hold of a copy of " Living Well with Chronic Fatigue Syndrome and Fibromyalgia "(Living Well (Collins)) (Hardback) By (author) Mary J. Shomon.
http://www.bookdepository.co.uk has it for $US 13.28 and $A15.12, with Free WORLDWIDE postage, (they also have 1587 books on Quiltmaking, Patchwork & Applique!). I borrowed it from the local library, and couldn't put it down. It answered so many questions. Apparently it is also linked to low thyroid.

It contained the best description of FMS that I have come across. "Think of your worst bout of flu, multiply it by 20, then imagine feeling like that all the time!" To me that is a good day. Multiply it by 50 for a bad day, and 80+ for a *very* bad day. When the family asks how I'm feeling, and I tell the on a scale of 1-80+ they get the general idea.

I've been taking 1 Dolased at night to help me sleep, but the last few days, even though they have been 20 days, all I want to do is sleep. Yesterday I got up at 9.30,opened the blinds then went back to bed. Woke at 1pm. Today I woke up at 11 am. Well over 12 hours sleep each day. A few years ago I was given 25mg Endep, but that knocked me out for 24 hours - literally! 12.5mg knocked me out for 12-18 hours, and 6.25 mg for 9-12 hours. Didn't matter what the dosage was, I got around like a zombie for the next 4-5 hours when I got up. Definitely wasn't safe to drive. If I planned on going into town I had to stop taking it 2 nights before I went. Decided that the cure was worse than the complaint, and ditched them.

The Dr that diagnosed me told me that fibro does NOT like cold, damp weather, or humidity. Well, it gets cold here overnight in winter (down to as low as minus 10C/14F), but there is no humidity at all. No where near the heat in Melbourne - 3000 km south - from where I moved 8 years ago, and I'm coping a lot better. It has only got to 40C/104F twice in the last 8 years. The year I moved here from Melbourne it was 28C/82F on Xmas Day,and Melbourne had 47C/117F. Best thing I ever did moving north.

Just as well I live by myself, I doubt if I could manage a family some weeks.
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