I do not have PAH, but, I do have cancer. Things I learned: 1. Do research and write all your questions down to ask the DR. and leave space for you to write the answers. 2. Have someone in the office with you as sometimes (with me when I heard the word cancer) your mind freezes and you don't hear another word
3. Do not believe everything you hear as each person's case is different 4. Contact the American Lung Assoc for info and possibly a list of Drs in your area. 5. Stay positive -- hope keeps us going, fear stops you in its track.
Good Luck!!!!!!