I have had it for over 20 yrs and my dh was just diagnosed w/it. Not a fun thing to deal with especially when you are treated like a hypochondriac! The worst experience I had w/a dr was one who told me I just needed to learn to look forward in my life instead of backwards and walked out of the office! Even his nurse was standing there with her mouth open after that happened. Needless to say I never went back to see that jackass again.