WE all know it's for "real" altho it's been an uphill fight for sure. Whenever I write the congressfolks, I point out that when I had to go on SSDI finally, I was making a good salary and contributing to the economy and now I am "draining" it. I figure if I can raise their awareness on a financial level that maybe the light will go off in their heads!
As they say "what do they call the doctor who graduates last in his class...DOCTOR!". The rheumatologists at least know we are for real, it's their subspeciality. Tho they seem to be reluctant to prescribe adequate pain meds, which means I gotta see both my paindoc and the rheumie, but I just see her once a yr to touch base.