Hi
I was diagnosed at least 15 years ago. I can't NSAID because it has an aspirin base. I have a sensoneural hearing loss (nerve deteriation) so with more aspirin--less hearing!! I take Paxil for chronic pain ( I think that is getting old) may need Cymbalta. Took Lyrica for years and resently, I had extreme swelling of feet over 2 days and that is one of the rare side effects, so we stopped that. Oh brother was that a week. Lasix put me in severe pain and could only take 3 days and thats all. I have been on Ultram and that helps some. Takes the edge off. The Dr. just put me back on Neurontin and it is helping take the edge off. So I am getting there. After I was laid off from work in 2007, I had two knee surgeries in 2008. That was bad. I applied for Disability and got it in 2010 after a fight. It give me medicare and that helped.
They took darvocet off the market and now I don't have a pain med. Need to get one.
Doc wants me to exercise and lose weight. Can't get that far. My muscles cramp and I hurt so much I am sore for days. I don't sleep well at night either.
But you all know this. This is a very depressing disease and very few people understand how we feel and hurt. I've read all the post and got a few ideas to talk to the Dr. about. Thanks.
Sorry this is so long. But it is one of the few places someone understands.
Thanks, Love and Prayers!!
Carol from NC