She was born this way and she is about 10. I do not know how to quilt so I am a new learner but I thought that there were so many people here that did quilts for charities I might could get someone to donate a couple so that she could keep one (she is in and out of hospital sometimes 3 and 4 times a week she travels to augusta which is about 2 hours from here and the research center is in NC I think) and maybe I could get a few for her mom to raffle off to get money. I have emailed her mom to get permission to post her site here so everyone can see what she is going through, If it was just a quilt top I would find someone maybe in savannah about 90 miles from here to quilt the top. I also think there is a senior citizen group here that might quilt it for me. Any help would be greatly appreciated. I know I just joined this group but everyone seems so loving and generous in some of the posts I thought I would reach out and see if someone would be interested in helping this little girl. Her little body is getting tired and she has had about 10 operations in 10 years. Now her kidneys seem to be not growing because of so many complications. You can go to KennedyJoiner.com and see her and her story. I was just trying to get something new for her support.