Awe, thank so much Melissa, and for the hugs too :) Oh i'm sure you can do it Melissa! :) I bet if you go to the hd forum and ask, someone will know where the hd centre of excellence is in your state. What i'm planning on doing is making lap quilts, and taking them into ubc for the hd social worker to give to people, she will know best you would like and need one the most. Or if there isnt a centre of excellence near you, i bet there is a local hd support group. Love you my friend (((hugs)))