My DD has lupus. She has to control her weight, limit stress, rountine doctor and dermatologist and lab work and lots of steriods. She did do an FDA study for Lupus using Vitamin A that was very helpful. Lupus is an autoimmune disease. There are several websites with chat rooms for sharing what you are going thru - she found a common ground here that helps on those days that you are angry, scared or just want to vent. She recently lost 50# which significantly helped her flare ups. She also has "bump's" along her cheekbones (like the singer Seal) but hers come and go with stress, so she sees a dermatologist. Take one day at a time, exercise, eat well and rest when you feel overdone. She is a great believer of naps.
**there are always studies going on, maybe one in your local area to participate in