Sammy, Sorry about my late response. I have Lupus too. I recommend joining a local support and online group. They were a huge help. Not that your family won't be, but no one can truly understand what it's like unless they live it. Feel free to PM me if you have questions. I'll be more than happy to help or at least guide you in the right direction. Are you on Plaquenil or Prednisone?
Take care,
Kathy
Hugs xxxx I know how difficult and life changing this disease can be.