Jamie, your daughter will probably be taking a step forward and 2 steps back for a while...and this is a normal thing that happens...hang in there, she sure sounds like a fighter, you all are in my prayers!!
I would call the caseworker first thing in the morning and ask him to please call you ASAP and then maybe you can get some questions answered by phone. Also find out if you can make an appointment during the times you can get to the hospital. They should be able to tell you if there is a Ronald McDonald house close, if there are funds to help with travel, call your local Social Service office, too. Keep asking each place, if you can't help me, do you know of anyone else that can. Here we have a poorly advertised number that has info on most all county, city, state and federal agencies, we dial 211. Check that number in your area, see if it works.