Originally Posted by
Lneal
My daughter was just diagnosed with fibromyalgia and one of her biggest problem is headaches. I am talking about the kind that sometimes sends her to the ER.Does anyone have similar problems? Any suggestions on what really helps with fibromyalgia?
Please be careful about recommending exercise for fibro. Yes, it can help, but we are overly sensitive to everything and exercise should only be done in tiny amounts at first and the increase should be tiny as well. Say a 5 min walk every other day for a week or so. If that is tolerated try daily at 5 mins. After that I'd increase it by another 5 mins every other day and so forth.
The best bet is to help her find a good rheumatologist, they are the ones who treat Fibro. And make sure it's one who believes it's physical disease, not just depression. Many of us are depressed, but wouldn't you be if suddenly your world turned upside down and you couldn't get any sleep and everything hurt all the time and your brain refused to work the way it always has? Please don't allow her to try to overdo and "work thru it". Many of us feel we hurt ourselves badly by doing so. I've had it since '79, even tho I didn't get diagnosed until the 80's.
I take Maxalt(prescription) at the first sign of a head ache and t seems to work for me. She might also try keeping a diary of what foods/smells/activities lead to headaches.