I was diagnosed in 1983. Headaches have not been a symptom for me, thank goodness. Headaches are so much harder to work around than body pain. Has your daughter been treated separately for migraines? I am finding a little relief from Lyrica, but I can only take a half dose if I want to stay upright. No side effects from a reduced dose. What helps? Chiropractic, supplements, hot baths, walking. Magnesium Malate from the natural food store is a Godsend. 6 a day when under attack, one a day for maintenence. Just magnesium and malic acid from apples, but it works wonders for me. It will stop a muscle spasm in its tracks. Of course if you take magnesium, then you need to balance it with calcium but that's not hard to do. Give your daughter a gentle hug from all of us who share her pain.