A very heart warming story. I am so glad you shared with us. She is a beautiful child. Us adults have to take notice from these little ones who suffer some horrible sickness.. and look at their little faces.. how smiley and bright. Our son was the same way.. I remember back in 1986 when my son was born with short gut syndrome, we had asked all the specialists about a bowel transplant. Our surgeon said we had a better chance of enjoying some life with our son NOT having the surgery. As at that time, there had been no survivors of that type of surgery at the time. The doc my son had at the time, traveled all over the US teaching bowel sugery and etc to others, and was on a team trying to get the transplant to work. We had questioned the surgery when we were told our son would never live to be 8.. one of the reasons was the TPN.. really does wreck a body inside.. I am very happy to say he is now married..and doing very well. So I will personally be praying for this little angel to have the very best outcome she can. My husbands brother is a kidney transplant survivor. So we know about all the meds...