Anael I wish I could be there to give you a hug, it is so hard going through something like this. Is there a counsellor at the hospital you and your son could talk to.
Keep asking the hard questions because the more informed you are the better, and don't let that doctor fob you off because as parents and grandparents you do worry and you do want to know what is going on. Knowledge of what is happening, gives you the strength to keep going, now knowing makes you worry more.
Praying for good news every day