Wow Erin
so sorry to hear that....sounds like your son has the right mom....keep strong for him!
Originally Posted by
aquiltymama
Barb -- Thanks. Unfortunately, these are all complications from a genetic disease he has, which, unfortunately, is eventually terminal. But, if you have to have any terminal genetic illness, this is the one... if we can keep him healthy enough, he can hopefully have 30-40 years. But, a lot only get 10, so it's just a lot of work.
Erin