Originally Posted by izzybelle

Thanks to everyone who has graciously commented on my situation. My biggest problem is that I have no "real" control below my midsection--I have no balance or am not capable of controlling my butt, knees, or even back. Keep the ideas coming tho-that 's how I've solved my problems in the past-just keep trying. (My stubbornness has allowed me to do some great things in the past 20 years that I've had this disease--and I refuse to give up now!!)