Originally Posted by fabric-holic
Originally Posted by SherriB
I don't have fibro but I do have lupus. I was diagnosed several years ago. I mostly have joint pain and sensitivity to the sun. My hands seem to hurt the most, especially the thumb joint closet to my hand. There are days when I wish I could just "pop" off the painful part and put it back when it finally quits hurting. I dread the day when it gets to bad to sew.
OMG! You described exactly my symptoms! I went to a rhuematologist in Jan. and he drew tons of blood but it all came back normal, according to his nurse. I wasn't hurting that day so maybe it affected the blood results. I almost couldn't function last summer (too much sun?) but over the winter I've only hurt maybe 2 or 3 days each week. My toes hurt too...I thought I'd broken several of them.
Right now my wrists and thumbs are so sore I can't pull the covers up at night, hold a heavy glass, etc.
I'm almost sure I have Lupus, although he didn't seem convinced.
After reading the posts I think I have Raynauds too. My fingers go white in the cold and hurt like crazy even when they're warming up.
Are all these different syndromes related?
I mean are they all auto immune? (Fibro, Lupus, Raynauds, Sjongrens, etc)
There is no marker in the blood that will diagnose Fibro. I can mimick nearly every other known disease. So it's hard to get an accurate diagnosis sometimes. The best indicator is the 18 tender points located around the body. You won't know they are there until the dr touches them, and then it hurts! I went to at least 15 doctors before someone said fibro. And the strange thing was, one doctor in California said I had Fibrositis, and I wasn't even there to see him. I had taken my son in for allergy testing. I'm going to try the Webbers 3.6.9. capsules. Can't hurt.