Originally Posted by butterflyquilter
Most people really don't understand how you can hurt so much with this disease. They can't fathom that the pain never goes away completely--just different degrees of pain. Do most of you find it hard to sleep at night? I think that is partly why I am so exhausted all the time.
Between my odd work hours and the pain, I was not sleeping well at all. One of my first doctors prescribed amitriptyline to help me get 7 hours of sleep a night. It has really helped. Otherwise, I was waking up every little bit from pain somewhere. The doctor explained that we need to get to the REM sleep in order for our bodies to heal and I was never getting to that sleep state. Be sure and talk to your doctor about that. They may want to prescribe something. Being sleep deprived only makes it all worse.