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Thread: Lyme Disease

  1. #26
    Senior Member doll-lady's Avatar
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    what kinds of symptoms do you have from lyme disease. i ask because i found a tick embedded and had died on my shoulder. i dug it out and then a month or so later, i woke up one morning with all ten toes and part of my feet completely numb. it was sunday so waited until monday and they thought i may have ms. they gave me some medicine for several days and it helped the symptoms but they didn't go away completely. they sent me to a neurologist and he did some tests for the ms but not the one that would really tells for sure so we just ended up and dropped it for the time being. i had gotten better but still have numbness in my toes and feet and hands. it is manageable so far. the doctors told me it was too late to test for the lyme disease. it has been 3 years and i am better than i was to begin with but still have numbness. they say i don't have diabetes, that their best guess is i have a virus and that they hope the symptoms will eventually go away but that they just don't know, that it might not.

  2. #27
    Senior Member Jamiestitcher62's Avatar
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    I have a friend that was diagnosed with Rheumatoid Arthritis and was taking those nasty drugs for 2 years. They weren't helping and she decided that she didn't have Rheumatoid Arthritis and had a lyme disease test done. Apparently there are 7 or 8 different lyme diseases you can have.

    Anyway after all the testing, she found out that she doesn't have Rheumatoid Arthritis, she has Rocky Mountain Spotted Fever. I guess the symptoms for the arthritis and lyme disease are very similar to the Fever.

    Most of the time the doctors will only give you one test instead of the multiple ones that are out there for lyme disease.

  3. #28
    Senior Member Vickymomof6's Avatar
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    It is a very bad year for ticks. I think because of the rain. Good advice for all to take.

    Vicky

  4. #29
    Senior Member Nancy Ingham's Avatar
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    Great warning and word of caution Kookie! On June 6, 2011 I went to the emergency room at our local hospital due to a bite that displayed the rash and distinctive ring. The doctor told me that it takes two to three weeks from being bitten by a tick until you display the rash and ring. Blood work was negative for Lyme disease however I was put on Amoxicillin for 21 days (every six hours around the clock)and told to return and repeat the blood work in three weeks. I donít even have a garden, but have found ticks on me just out walking my Bella! The ticks are very heavy this year here in New Hampshire as well. Take care all.

  5. #30
    Power Poster sueisallaboutquilts's Avatar
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    Patricia, I'm so glad you're being treated and thanks for the reminder for the rest of us.
    HUGS, Sue

  6. #31
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    I developed HBP from LymeD. Please everyone, insist your doctor test you and if he doesn't get another doctor. Unfortunately this tick bite can cause problems in any part of your body and organs. More reseach is desperately needed but too many doctors do not take it serious enough. Good luck to you all.

  7. #32
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    I also got lyme Disease when we lived in NY and I was working in the yard. Mine turned into a bulls eye and got very sore. Went to the Dr. got some medication and so thankful and fine today. :)

  8. #33
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    I killed somethng last nite, don't believe it was a tick, but it was loaded with blood. Going to take to my Dr. this week.

  9. #34
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    you might want to ask your doctor to check you for erlichea(spelled as it sounds as I'm terrible at spelling) and rocky mountain spotted fever. both are carried by ticks and some ticks carry all 3. hope you recover quickly and without too many problems. :)

  10. #35
    Super Member wanda lou's Avatar
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    good info to post.

  11. #36
    Senior Member Feather3's Avatar
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    If you even think you've been bitten by a tick get to the doc or hospital/ER ASAP & insist they test & treat you. If they refuse go to a different doc and/or ER. If left go you can & will get Lyme disease. This is nothing to mess with as it can cause permenant nerve damage, organ damage, etc. You don't always get the rash or bulls eye either. Docs just don't take this serious enough.

  12. #37
    Super Member mimee4's Avatar
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    I am so sorry to hear the stories of Lyme disease. A friend had it and he was in the hospital, truly out of his mind. He did get ok but it was a long time. Please do be careful.

  13. #38
    Super Member great aunt jacqui's Avatar
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    Glad you were tested and not made to suffer and suffer without a diagnosis. That happened to a friend of ours. After 6 years of treatment. IVs every day for over a year...lost his job, almost lost his wife and then 3year old twinn girls. They never saw him as a well dad. He searched and found specialists in Lyme . He travelled every week to CT, Ins did not pay for the treatment he got there. thankfully he is halfway there.
    So please check for those ticks...no matter what kind they are.
    check in kids socks and shoes ours too.

  14. #39
    community benefactor stitchofclass2's Avatar
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    I am so sorry that you were attacked by a deer tick. That stinks. For me, I went to the hair dresser on Thursday and she found a (regular) tick in my hair. Yuk!!! I try to always wear a hat but didn't that week. So you are absolutely right. Be careful especially with children.

  15. #40
    Super Member brushandthimble's Avatar
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    I was routinly ?sp- tested by a blood test as part of my physical, based on the town I live in. I have a large yard backed by woods, the little girl next door age 7 has had it 3 times.

  16. #41
    Super Member karenm36's Avatar
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    Quote Originally Posted by doll-lady
    what kinds of symptoms do you have from lyme disease. i ask because i found a tick embedded and had died on my shoulder. i dug it out and then a month or so later, i woke up one morning with all ten toes and part of my feet completely numb. it was sunday so waited until monday and they thought i may have ms. they gave me some medicine for several days and it helped the symptoms but they didn't go away completely. they sent me to a neurologist and he did some tests for the ms but not the one that would really tells for sure so we just ended up and dropped it for the time being. i had gotten better but still have numbness in my toes and feet and hands. it is manageable so far. the doctors told me it was too late to test for the lyme disease. it has been 3 years and i am better than i was to begin with but still have numbness. they say i don't have diabetes, that their best guess is i have a virus and that they hope the symptoms will eventually go away but that they just don't know, that it might not.
    My understanding is that it is NOT too late to be tested for Lyme Disease. I have a friend who had it undiagnosed for years. She had terrible complications and nearly died. Finally someone suggested she be tested for Lyme disease...and it was positive! Treatment is more intense when it's been in your body so long and she had a whole bunch of other co-infections because of it's duration but she is slowly improving. If you're not getting the testing you need then see if you can find another physician who specializes in diagnosing and treating it. It will only get worse if that's what you have. Good luck!

  17. #42
    Super Member Carron's Avatar
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    Oh you poor thing. Hope you get better fast.

  18. #43
    Super Member Leota's Avatar
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    Oh Kookie... I'm so sorry you have this...
    Please take care..
    One of the things I read about being "in the wild" is to tuck your pants into your socks (wear knee high and wear gloves that go over the cuff of you shirts... I know in the summer heat to wear long sleeves and long pants is torture but it prevents the buggers from getting on your skin as easily

  19. #44
    Dee
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    Super Member Dee's Avatar
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    So sorry to hear this. Hope you feel better soon.

  20. #45
    Member Dixiejar's Avatar
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    Dear Kookie,
    I had Lyme disease in 1992 from a tick bite. Be sure you stay on your meds for at least a month. Unfortunately there are no accurate tests to determine if you are completely free of the Lyme spirochetes. Blood tests are not accurate because the spirochetes invade tissues and do not stay in the blood stream.
    This research link will help you understand the illness. I continue to research Lyme because I still have lingering symptoms and have test positive for the antibodies. You can cut and paste this link into your browser.
    http://www.lymenet.org/BurrGuide200810.pdf
    I pray you have a complete recovery and can enjoy quilting for many years.
    Sincerely,
    JoAnn Taylor Rice

  21. #46
    Super Member nwm50's Avatar
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    Wow...this was some deep, interesting topic to read and im going to make sure i ck'd all my grandchildrens who comes to the family farm for any tick upon entering the house! So sorry for all who had complications from these bites and improving now.

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