Hi All! Just wanted to post that Thursday, May 12 is Fibromyalgia Awareness Day. I am on a quest to have as many people wear purple this day as possible to help raise awareness. I suffer with it everyday but am determined to win the battle (some would say I'm to stubborn to not win :lol: ).

This disease was once believed to be all in the persons head or a catch all diagnosis when they didn't know what else to call it. A lot of research has been done and now doctors understand that it is a 'real' medical condition and are treating it as such. I see several doctors to help control mine and work with it everday.

Thanks to all who can participate in the wearing purple on May 12th!!

I too am a fibromite and support a cure/treatment! I won't be going out of the house tomorrow but I've sent messages to Congress in support of the issue.

Have a wonderful day!

Ice to suffer from fibromialgia. Let us hope someday there can be a cure found. Thank you for posting this to help make people aware

I didn't know there was a Fibromyalgia Awareness Day!!!! I will certainly wear purple. It's sad that not many people will know why. I know the medical profession has come a long way to knowing out to diagnose and treat Fibro altough sometimes it still feels like they just treat the symptons.

We must continue research and education!!

From another Fibromite who's really suffering today!!

I too am a fibrolite! Thunderstorms here for days and more days so really feeling it!
Go

Purple for tomorrow....will do!

everyday I get up and can't walk upright, or my legs burn, or everything just hurts... it is fibro "awareness day"..... I will wear purple for sure!

I will also be wearing purple!! Some days it is a killer pain in the ___!!

Absolutely.

There is an inexpensive product out that actually works. Its an over the counter. pm me and I will give you the info

count me in....I too, have it!

me too..been diagnosed since 1982..when it was called fibrositis..

Dx in 1997

I have it too...but won't be going out...will wear purple anyhow...
I was one of the ones that a Dr. told me it was in my head....that was the last time I saw him.
This needs to be publicized more...

So many of us in the same leaky boat!!! Sometimes I have to laugh just so I won't cry!

Our priest has is - does pretty well despite it.

Please pm me as well. Nothing works for me as a pain reliever, not even vicodan.

Yes,I will wear purple.Starting to storm here and I knew it before the weather people did! If you have it,you know what I mean!

Diagnosed in 1983 before most doctors were even aware of it. I had to look it up as I'd never heard of it either. Now I wish things had stayed that way. This year has really been downhill. I started Lyrica Monday, so it's too soon to see if it helps.

Purple it is!

I will wear purple too... And I think I will wear my pretty silk purple and lace nighty to bed too as an extra measure.

I also was diagnosed with fibro back in 2002. I take Lyrica and it seems to help MOST days. The weather seems to bother me when its changing.

My fibro has been acting up also due to the weather and being to active. I will be wearing purple for sure

Barely raising arm to wave, I have it too. I don't have anything purple to wear but I sure pass on the info to anyone I can get to listen. I can't use SSRI's so all the new meds are out for me. I use mind control to get past most of the pain but still need various other meds so I can have some sort of a life.

I am not able to go out tomorrow but I will still wear purple.
I was diagnosed on 911, the 911 when the planes hit, when the US was attacked. That helped put it in perspective.
Unfortunately I had it for 16 1/2 years before I was finally diagnosed correctly. And there are still so called doctors who think it's not real-how can someone so ignorant have a medical degree???
Hope you all have a decent day tomorrow.
Kat

flax seed oil (omega 3) ( capsules, oil, ground avail) really helps me
diagnosed in 1990

Diagnosed in 1991, but told it was in my head by several doctors previously. It is such a pain...literally!

Storms, wow! I am proud to wear purple.

Thanks for this thread.

Thank you for bringing this up. I have suffered all my life. Now, I have the elderly problems on top of it. I did not know there was a special day. Thank you - Thank you!!!!

Will do!@

Hi Everyone!! I'm so glad that you were all receptive to my post - as all of you know not everyone views fibromyalgia as "real". I have suffered for years too and am now seeing a rheumalogist, family doctor, chiropractor and am set up to see a nutritionist. I take Cymbalta to raise my serotonin levels (which have been out of "whack" for years and have caused migraines long before the fibro pain) and started Lyrica a few weeks ago. I'm getting better sleep and think that I am getting all the proper sleep cycles with the Lyrica and am feeling less exhausted. As fair as pain....well lets just say it's work in progress. Living in Michigan with the weather is rough, my pain started up worse late yesterday, I think in anticipation of todays rain and storms - funny how our bodies know before the weather people do!!! Anyhow, thanks for supporting my efforts and the encouragement - I painted my toe nails purple last night and will proudly wear my purple beaded watch and shirt today for all of you and hope they find a cure for us all soon. Hugs and kisses to each of you!

I have had it for over 20 yrs and my dh was just diagnosed w/it. Not a fun thing to deal with especially when you are treated like a hypochondriac! The worst experience I had w/a dr was one who told me I just needed to learn to look forward in my life instead of backwards and walked out of the office! Even his nurse was standing there with her mouth open after that happened. Needless to say I never went back to see that jackass again.

I had a dr who I had seen for years tell me that I really needed phsyiatric help. He wasn't my family dr after that. I went on to others and have been on SS Disability for 8 years now. I guess it wasn't in my head! I would paint my toes but theres' no way my body will bend like that. I will wear purple though. My favorite color.

Just got dressed in Purple...even put on purple undies for good measure....not sure if this is a day to be able to go out yet...I don't drive on bad days....not safe.

there are alot of people here that have FMS and CFS..

Hey girl friend, thanks for letting us know and I will certainly wear purple today! I need to do everything I can to keep my favorite long arm quilter happy and healthy!!!

If I had purple I would wear it.My rheumatologist says it is very real.Body hurts most of the time though I am not handicapped by it.For that I am very glad.

WE all know it's for "real" altho it's been an uphill fight for sure. Whenever I write the congressfolks, I point out that when I had to go on SSDI finally, I was making a good salary and contributing to the economy and now I am "draining" it. I figure if I can raise their awareness on a financial level that maybe the light will go off in their heads!

As they say "what do they call the doctor who graduates last in his class...DOCTOR!". The rheumatologists at least know we are for real, it's their subspeciality. Tho they seem to be reluctant to prescribe adequate pain meds, which means I gotta see both my paindoc and the rheumie, but I just see her once a yr to touch base.

I've got it too, dang it all! People think im kidding when the touch me and I cringe with the pain.

Oops! Will have to wash a load of reds so I will have something clean and purple to wear!

I was diagnosed 12 years ago but have had it much longer. I take a handful of pills every day. Been on Lyrica for a few months now and it seems to have lessened the pain. It certainly isn't gone but much better. I have learned that I need to avoid sugar. It seems to make the pain worse. Of course do I avoid sugar? Not. And I'm diabetic. Struggling with this.

I don't know how I would make it without my occasional Lortab. The drs are so stingy with it. Won't give me but 15 a month and no refills so I have to spend $25 every month just to go get my refill. Irritates me.

Anyway....so glad you brought awareness to this day! I didn't know it existed.

Aaawww thanks Nancy - the great part is I can really HUG you - that's what friends are for!!

For all of you struggling with this, here is one of my favorite quotes: "I have fibromyalgia, fibromyalgia doesn't have me".