I wanted to post a picture of Morgan from a few days ago....she looks good, and is very beautiful! The nurses and doctors are trying there hardest to make her comfortable since she is not right now.
One baby step at a time, but eventualy I will be able to pick her up take her home, and wrap my arms around here and never let her go...

My goodness, I really hope you can have her in your arms soon. My thoughts and hopes are with you.

I should say, most of those tubes and such are now gone..and she is looking cleaner and brighter :)

Oh Jamie - your beautiful, precious baby girl. I'm sending you all the strength I can and hope that day you pick her up and take her home comes soon.

WOW thanks for keeping us updated.

Jamie, how this must be breaking your heart -- to see Morgan this way. I still pray for Morgan's care and well-being, and for your emotional and physical strength. Don't forget to eat and take care of yourself.

Jamie, please please make that call to the social worker at the hospital and to your local county offices for human welfare. They may be able to help.

Anytime I think of another resource I'm writing it down and posting it for you. Be brave and strong. I'll let you fall apart after that baby girl is doing well and back home with you!

Hugs,
Sharon

I'm so happy to hear she is doing well!!! She will be going home with you before you know it!

Praying for you and that sweet little girl.

Jamie, your posts have been making my heart ache for you. I am praying for you and your beautiful beautiful daughter! I wish I could wrap my arms around YOU!

Thank you Jamie for letting us in the hospital room with you. Soon this will only be a memory and a story to tell of the miracle Morgan and you received as she plays nearby at home!
It will come just keep the faith! She is a beautiful child tubes or not!

Thank you all!!! For anyone who could like to send a card, or colored picture or anything that might make her feel more comfortable please let me know....there are also many people on here who have our home address....I have personaly gotten a coloring book, and I am just coloring pictures and putting them around her room for her...I think ever little bit will help her...specially since I can't be with her much right now.

Jamie, you must feel so torn between Morgan and the rest of your family. But soon she WILL be home and all your kids will be under one roof again.

I've PMd you.

Oh Jamie ~ my heart just breaks for you. Glad she is a little more comfortable now with some of the tube gone. I know that helps you only so slightly. I continue to pray for Morgan daily, and hope that you can find some help in family, friends or the social network at the hospital soon! I wish I were close enough to drive you to the hospital or take care of the other kids for you. I know it is hard on your DH too, having to work when he really wants to be with Morgan or the other children right now.

I am PM(ing) you for addy.

Rebecca

My thoughts and prayers are with Morgan, you, and with the rest of your family. May you find strength during this difficult time. Your baby will be home before you know it.

I'm trying to keep strong..we all are...I have to be for Morgan, she needs me! Thank you all for everything~ Some day when things are better, I can show you all how much your kindness means.

Hang in there, Mom. You are really earning your stripes!

I'm glad to hear that Morgan doesn't have all the tubes,
etc. But, I am also glad that modern medicine can help
people with all the devices that go with "getting well".

Sending you sunshine and hugs---don't forget we're thinking
and praying about you. (and we are FORCE to be reckoned
with! lol :lol: )

I think Morgan looks so beautiful in the picture and am so glad she is doing even better.

I'm so sorry that you and your family are having to go through this, I hope the doctors discover what's wrong with her. We're all rooting for her. Please keep us updated.

She is a very beautiful special child. Keep hanging on, we are all pulling for you

She is beautiful! Stay strong Mom!!! Praying for a full recovery!!!

Ohhhhh, what a sweet, beautiful, darlin'!!!!! It won't be long before you can crawl into her bed with her and give her hugs and snuggles!!!! Hang in there mom, each of those baby steps take her that much closer to being back home with you and your family!!!! :wink:

Just hug her, talk to her and be there for your , that is all you can do. My heart breaks for you as I know how hard all this can be. You have to believe that she will get better and that soon you will be holding her and taking care of her. Look thru the blue pages in your phone book ( if you have them , they are the government section ) and start calling everyone and anyone who deals with child welfare, children, social services. I don't know how it is in PA but in Indiana we have county offices and township offices who will help in emergency situations, call them. Just start calling all of them until you find the help you need.And don't forget your state representatives and even the governor


So sorry you are going thru this
{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}

Sharon

How sweet. and we are all praying for the day that picture will be a distant memory and you won't be able to remember how hard it was to see her all hooked up.
My memories of my brother with his baseball stitched head after an auto accident are very difficult to pull up. Will pray that that time comes soon for you all.

I wish there was some way to help you Jamie!! If I lived closer I'd take the kids for the day/night so you can be with Morgan!!! If there's anything I can do from CA, just let me know. you are going through such a hard situation, and as mothers and fathers, we cannot imagine living with this. Stay brave and strong - this will be an invaluable life lesson for you, and your children. ****************hugs all around you**************

I'm glad she is doing better. Hang in there. {{{{{Hugs to you}}}}}

Oh Jamie, that picture brought tears to my eyes. I want you to know that we are all praying for Morgan and your entire family.

I still believe in miracles and know that she will get better. It may take some time, but since she is so young I know that she will be walking and running eventually. (I am the one whose dentist's son had a stroke and he has recovered almost 100% - Morgan can too.) Tell those docs that your daughter has already beat odds and with positive thinking is going to come out of this OK!

Poor little baby girl! And poor little mama! This has to be tough on all of you. Hope she can come home soon! Be sure to take care of you so you can take care of her!

Jamie, I am praying that Morgan is well and home with you soon. I am so sorry for the pain you and your family have suffered recently. Please take care of yourself you are needed. Maribeth

Can we have a picture of her before this happened, to focus on, if you have time?

I'm not much of a religious person, but found comfort recently having a photo of a friend's child (who has cancer) on my dresser, with a special candle burning for her. I'd like to do that for Morgan too, if that's ok.

((hugs))

what to say, mom? I've got both kinds of tears going on...and hugs for you all. Stress can make families back away from each other, or bring them closer together. Praying that you all are knitted together by your love for each other. Also praying, that someone steps up, and sits with your other children, so you can be with Morgan more.
If you have/had a tape recorder, you could make tapes with your children to play for Morgan, and vice versa. Don't know how long she will be in hospital, but recovery will take a while. Praying you get all the help you need,...which is a lot!

The warmest healing hugs to your family, Jamie. You've all been in my prayers. So very glad to hear she's improving!
Big warm healing hugs,
Diana

My heart and prayers are with you and Morgan. Thank you for posting pictures and keeping us updated. I know it is hard to get away from your baby to do anything. You will be holding and hugging her soon .
BillsBonBon

thank you for keeping us updated! Do the doc's know what the problem is yet? Its been a while since I have been on here so that is why I am unclear. Our hearts go out to you all & our prayers are with you.

hugs to you all. P.S. your daughter is adorable!!!!!!!!!!!!!!!!!!!!!!!!!!!

Jamie- that is one beautiful brave baby girl you have there. You give her a gentle hug and a kiss and tell her there are folks here in Massachusetts who wish her a fast recovery.. God bless

Lisa

Jamie,

Do you know that several (ok, probably more than that, but time flies) years ago NIH did a double blind study on prayer and healing? They had a group of monks or nuns, in a cloistered community (meaning they never left the monastery/abbey) and sent them the name of a specific person many states away, who was having a surgical procedure. That's all they knew, a name. Not what was wrong with them, not when, where, why or anything else. The person being prayed for did NOT know they were being prayed for either. All of the patients had the same surgical procedure. NIH results showed that there was a very big difference in success, outcomes, complications and recovery between the patients who were prayed for, and those who weren't.

Morgan and you have lots of people praying for her. I believe it will make a difference. Hang in there kiddo. And there are as many hugs as prayers coming your way.

Angels help too.

Here is my before picture of Morgan....we just got back from the hospital..she's had more tubes removed, she goes in for her angiogram tomorow..and they told me she is slowly coming out of critical care....the swelling and such is the same, but she seemed calmer, today, less spastic movements, and much more aware of me, and her siblings...I asked about the piece of her brain that they removed, and they said that this is the same piece they remove when kids have siezures and not to worry..but have told me nothing else, and nothing new...waiting is the hardest part...

She's just gorgeous!

Something I learned when my nephew had major head surgery (he was 7 too, and now, one year later, seriously you would not know to look at him what he'd been through). The swelling is massive, and intense, and it takes a LONG time to go down. So don't be afraid if it's not as quick as swelling on any other part of the body. We were warned that his head would be swollen for up to six weeks, and while it would improve slowly over that time, it wouldn't be completely gone for at least six weeks.

Something else I learned... don't be afraid to ask questions. Ask for a contact number or email address if questions pop into your mind later when you're at home. Keep a notebook to write your questions down in so you don't forget. And most of all, don't be afraid to say "wait a minute, I don't understand" and force them to explain it in human language. You are entitled to be fully informed of what is happening (or not happening) with your child.

I wish I could be there to help you. Someone should be backing you up, you should have some kind of support person at the hospital whose sole job is to look after you and make sure you are getting what you need.

I've printed Morgan's picture out, and have a new candle just for her. Will keep it lit and will keep sending love and hugs for as long as it takes.

Vix
((hugs))

This hospital is amazing! There is nothing there that I dont understand, and if i dont understand something that even print me up info for me to read...they call and send doctors into me all the time just so I can talk to them, and they even call me at home ( surgens and doctors and nurses ) to let me know stuff....they drop what ever they are doing to answer anything...even at 2 in the morning when I call...These doctors and nurses and staff are so supportive, and amazing I couldn't possibly ask for a better place for her. They let me help with everything..to are family oriented, being a childrens hospital..and it's just incredible! She is in amazing hands there...which i think is the only reason I can stand to leave her side...