Thank you for asking this question. It is very timely for me also, just now. I am struggling with the decision of whether to sign up for a retreat.
I know that after it's over I will lose at least 2 days, but I think it will be worth it.
For myself, I know that the fibro and all it's "friends" cause me to lean towards being a bit hermitish, and I tend to withdraw into myself and my home. My DH is all for me going as he knows it is best for me to be out and socialize.
I have many skills for coping with the pain, lots of meds to take, etc., however, I don't like being in pain in public. LOL, Silly I know, but the attention makes me uncomfortable. I want people to just ignore me. LOL
How many times have we all had this conversation?
"Are you ok? Yes, thanks, I'm fine. You don't look fine (so good;OK, etc.) No, I'm fine, really, it's just the fibro. Can I do anything to help? Aw, thanks so much, but really, I'm fine!"