Those with Fibromyalgia ,,,question
#61
Power Poster
Join Date: Jul 2010
Location: Eastern Washington
Posts: 29,519
I've had FM for years, and I can really tell when the weather is gonna change! Also stress, and hot or cold bother me. When I get cold, I get stiff and achey, and a hot tub feels great! Or a hot shower. Fibro fog is horrible and unpredictable. I have sleep issues too. I do take a pain med, as well as a muscle relaxer. That helps me through the day. I do not take Celebrex, or Cymbalta as they do not work. I take magnesium, and Chondroitin/Glucosamine. They seem to help.
I have recently had some saliva tests done (for hormones, etc.) and got put on hormones and thyroid meds. Has made a big difference!! My flare-ups are less, and I sleep better too. Hope this helps! :)
I have recently had some saliva tests done (for hormones, etc.) and got put on hormones and thyroid meds. Has made a big difference!! My flare-ups are less, and I sleep better too. Hope this helps! :)
#62
Senior Member
Join Date: Nov 2006
Location: Catskill Mountains
Posts: 360
Originally Posted by lovelyl
Yes! I can tell when a storm front is moving in. Very painful!
#63
I am soooo amazed to hear that other folks have been suffering with this as long as I have. I was 1st diagnosed in the early 1980's and it was called Fibrositis----I too went from doc to doc and was told it was all in my head. It got soooo bad that I agreed "ok it's in my head, now fix it"---- I'm sure I have had this my whole life---As a child I had horrible leg aches that would keep me up most of the night. My parents were told it was growing pains but funny thing I guess I kept growing, only thing is I'm only 4'11 1/2", LOL
Don't give up if you are still searching for help----Things have moved forward for us soooo much in the last 5 yrs and I feel like it will be sooner not later that science will figure out what is going on with us.
Lastly, I've noticed a lot of mention regarding toxins and allergies---I do believe that we are more subject to these problems because of Fibro not the other way---I was diagnosed with Celiac 3 yrs ago which is an autoimmune condition. Since I have been on a gluten free diet and on the Cmybalta I have improved greatly---
My hope is too see this condition understood before I die---
Don't give up if you are still searching for help----Things have moved forward for us soooo much in the last 5 yrs and I feel like it will be sooner not later that science will figure out what is going on with us.
Lastly, I've noticed a lot of mention regarding toxins and allergies---I do believe that we are more subject to these problems because of Fibro not the other way---I was diagnosed with Celiac 3 yrs ago which is an autoimmune condition. Since I have been on a gluten free diet and on the Cmybalta I have improved greatly---
My hope is too see this condition understood before I die---
#64
Super Member
Join Date: Aug 2010
Location: Jacksonville, FL
Posts: 1,389
Originally Posted by watterstide
FMS is ffected by weather..i feel like heck this week..i am so sore. mind isn't working so good either..lost words,forgeting things..typical flair up.
am going to have to go see the Doc and get a shot this week.
i think it is called "terdol" anti imflamitory ..
my husband had an accident this week..so between that and the wether..i m in a flair..
am going to have to go see the Doc and get a shot this week.
i think it is called "terdol" anti imflamitory ..
my husband had an accident this week..so between that and the wether..i m in a flair..
I do find that heat and especially humidity make it worse but frankly it's all I can do to keep working. I don't have health insurance (turns out you can't get private insurance if you have fibro -- turned down by everyone I applied with). I don't get sick days, personal days etc. DH had a disabling stroke in 2008 so I can't quit work. Fibro isn't a recognized 'disability' from a social security standpoint so basically, I'm in a no win situation with the fibro.
I have my computer remind me every hour to get up and walk while I'm at work so I don't stay in one position all the time which helps. My arthritis is also a lot worse when it's hot and humid. I actually do better in cold weather (Florida cold, that is-LOL).
#65
Originally Posted by IBQLTN
Originally Posted by watterstide
FMS is ffected by weather..i feel like heck this week..i am so sore. mind isn't working so good either..lost words,forgeting things..typical flair up.
am going to have to go see the Doc and get a shot this week.
i think it is called "terdol" anti imflamitory ..
my husband had an accident this week..so between that and the wether..i m in a flair..
am going to have to go see the Doc and get a shot this week.
i think it is called "terdol" anti imflamitory ..
my husband had an accident this week..so between that and the wether..i m in a flair..
I do find that heat and especially humidity make it worse but frankly it's all I can do to keep working. I don't have health insurance (turns out you can't get private insurance if you have fibro -- turned down by everyone I applied with). I don't get sick days, personal days etc. DH had a disabling stroke in 2008 so I can't quit work. Fibro isn't a recognized 'disability' from a social security standpoint so basically, I'm in a no win situation with the fibro.
I have my computer remind me every hour to get up and walk while I'm at work so I don't stay in one position all the time which helps. My arthritis is also a lot worse when it's hot and humid. I actually do better in cold weather (Florida cold, that is-LOL).
Linda King
#67
like KristinaH I take Cymbalta. for years they told me it was all in my head. (it was) I had Arnold Chari and had surgery after they found that they said I also had Fibromyalgia and the only thing I have found to help is Cymbalta
#68
Originally Posted by dar627742
Originally Posted by chairjogger
absolutely ! humidity the worst !
take care of yourself.. good food, rest, not over extending yourself.
you have things in life you have to do.. good luck honey in figuring out what makes you feel better.
Ell
take care of yourself.. good food, rest, not over extending yourself.
you have things in life you have to do.. good luck honey in figuring out what makes you feel better.
Ell
take care,
dar
#69
I have fibro too and when i have those times I can hardly move my DH just grabs his raincoat. he says i am more reliable than the weatherman. after reading this post I am wondering how to tell if the fibro fog is because of that or my stoke? there are days I just want to be quiet and not even try and speak or answer questions from anyone.the right words just don't come out. never thought about what you all call the fibro fog related to that. just thought I was losing it. thanks for the question and the informative answers.
#70
I find weather changes impact my fibro. I also notice when I am running errands ...in and out of the heat and AC, that it just kills me. My personal thermostat seems to be broken and I just cannot acclimate to constant temperature changes...wish I knew the solution.
Thread
Thread Starter
Forum
Replies
Last Post
Ditter43
General Chit-Chat (non-quilting talk)
312
08-17-2011 09:30 PM
minnow895
General Chit-Chat (non-quilting talk)
28
08-31-2010 04:28 PM