Quilt Retreats and Fibromyalgia
#41
Originally Posted by vickig626
Originally Posted by BrendaY
If I was in my 50's, I would go... bringing all my comforts with me. But I'm in my 60's now, and absolutely would not... I'm much happier and more comfortable at home where I can rest, work, rest in 15 minute intervals....... but that's just me.. Maybe you should try it once, so you'll know next time a retreat comes up..
#42
Super Member
Join Date: Nov 2010
Location: Port Charlotte, Fl
Posts: 2,569
that is so nice of you to offer to take someone plus a friend to hang with also. hope you both have a wonderful time you both deserve it. i know the pain issue i can't take them when i have to somewhere especially when i drive and i can't take the heavy duty drugs. have fun. sue
#43
Junior Member
Join Date: Mar 2011
Location: Big Timber, Montana
Posts: 154
I have 2 friends that have tried acupuncture treatments for their fibromyalgia and are very pleased with the relief. I have MS and I go for treatments for the crushing fatigue that happens sometimes and I am very happy with the results!
#44
From someone who deals with fibro, too, I say just go for it! Do what you need to do, stretch, walk, sit, stand, lie down. But I think the whole retreat atmosphere is worth a little get-away from the routine. And you might be having so much fun you won't notice you're hurting!?!??
#45
Super Member
Join Date: Dec 2009
Location: Liberty, Pa
Posts: 2,084
I have fibro and attend retreats. Get up and walk around, take a nap if you need to, sometimes concentration is a big issue for me, so I take someting simple to work on. Then when I get home, I usually sleep for the best part of 2 days. Bit I still think it is worth it!!
#47
Member
Join Date: Dec 2010
Location: Emporia Kansas
Posts: 40
I'm with you. FM does Suck!! But I do sew several days on end. I take breaks often and of course my meds when needed. So Go and have a good time. Even when there is pain the beauty you see being created around you helps to relieve the pain in many ways.
#48
Yes it does sweetheart. Noone understands that we never know what we can do until that day. And then, sometimes there can be changes during the day. I hope you get to go and please let me know how you did. I also have arthritis and lymphodema in both legs so I probably wouldnt be able to walk after getting there
#49
Super Member
Join Date: Nov 2010
Location: Natchez, Ms
Posts: 1,482
Originally Posted by vickig626
Just wondering if anyone who has Fibro has gone on a quilt retreat. Specifically, how did you handle your pain while trying to sew, etc. for 2+ days. Were you actually able to enjoy the weekend?
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
GO!!!! Fibro really sucks!!! Stop if you have to, in a safe place. Just do what you can and rest when you need too. It's better to do something then not do anything because of it. That's what I do, and I feel better for trying. It's holding up my "kiddie" quilts, but not stopping them!!! Go have fun!!!
Thanks for any input.
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
GO!!!! Fibro really sucks!!! Stop if you have to, in a safe place. Just do what you can and rest when you need too. It's better to do something then not do anything because of it. That's what I do, and I feel better for trying. It's holding up my "kiddie" quilts, but not stopping them!!! Go have fun!!!
Thanks for any input.
#50
Thank you for asking this question. It is very timely for me also, just now. I am struggling with the decision of whether to sign up for a retreat.
I know that after it's over I will lose at least 2 days, but I think it will be worth it.
For myself, I know that the fibro and all it's "friends" cause me to lean towards being a bit hermitish, and I tend to withdraw into myself and my home. My DH is all for me going as he knows it is best for me to be out and socialize.
I have many skills for coping with the pain, lots of meds to take, etc., however, I don't like being in pain in public. LOL, Silly I know, but the attention makes me uncomfortable. I want people to just ignore me. LOL
How many times have we all had this conversation?
"Are you ok? Yes, thanks, I'm fine. You don't look fine (so good;OK, etc.) No, I'm fine, really, it's just the fibro. Can I do anything to help? Aw, thanks so much, but really, I'm fine!"
I know that after it's over I will lose at least 2 days, but I think it will be worth it.
For myself, I know that the fibro and all it's "friends" cause me to lean towards being a bit hermitish, and I tend to withdraw into myself and my home. My DH is all for me going as he knows it is best for me to be out and socialize.
I have many skills for coping with the pain, lots of meds to take, etc., however, I don't like being in pain in public. LOL, Silly I know, but the attention makes me uncomfortable. I want people to just ignore me. LOL
How many times have we all had this conversation?
"Are you ok? Yes, thanks, I'm fine. You don't look fine (so good;OK, etc.) No, I'm fine, really, it's just the fibro. Can I do anything to help? Aw, thanks so much, but really, I'm fine!"
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