Anyone have scleroderma

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Old 06-08-2011, 08:44 PM
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Wondering how many quilters have scleroderma.
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Old 06-08-2011, 09:19 PM
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One of my aunt's had it... I have fibromyalgia... both are autoimmune diseases. While I am not diabetic, I do have neuropathy in my hands and feet. One of my greatnieces now has scleroderma...

My Aunt Shirley was a hairdresser and first noticed that her hands would feel asleep. She would stop working and shake them to get the circulation going. Later, the skin on her cheeks got hard... oddly tho, her face went back to soft after a while - maybe it was the medication. She died of brain cancer, tho.

Thank God for good doctors and good meds! I hope your question was just rhetorical, and that you don't have it.
Hugs....
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Old 06-08-2011, 09:26 PM
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My sister has it, but she does not quilt.
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Old 06-08-2011, 10:08 PM
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Originally Posted by BrendaY
One of my aunt's had it... I have fibromyalgia... both are autoimmune diseases. While I am not diabetic, I do have neuropathy in my hands and feet. One of my greatnieces now has scleroderma...

My Aunt Shirley was a hairdresser and first noticed that her hands would feel asleep. She would stop working and shake them to get the circulation going. Later, the skin on her cheeks got hard... oddly tho, her face went back to soft after a while - maybe it was the medication. She died of brain cancer, tho.


Thank God for good doctors and good meds! I hope your question was just rhetorical, and that you don't have it.
Hugs....
I wish my questions was rhetorical. ... and thank you for your hugs.

I was diagnosed with it in the mid 70's so I've long since come to terms with it. Have been fortunate that it's been relatively mild all these years.

Glad that your aunt's facial skin soften. There have been cases where its gone into remission.
My doctor wonders how I can keep quilting...told her I'm stubborn ... I'll keep doing whatever I can as long as I can.
I just gave her a quilt! :lol:

:wink: :wink: :wink:
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Old 06-09-2011, 01:53 AM
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Good for u to keep quilting! It can't be easy tho!
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Old 06-09-2011, 02:58 AM
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Hopefully you'll go into remission, too! What an awful disease.
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Old 06-09-2011, 03:57 AM
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Originally Posted by Momsmurf
There have been cases where its gone into remission.
My doctor wonders how I can keep quilting...told her I'm stubborn ... I'll keep doing whatever I can as long as I can.
I just gave her a quilt! :lol:
:wink: :wink: :wink:
That's the spirit .... keep doing what you enjoy and let it help you work thru the challenges of sclero! Do hope your Dr. is enjoying your quilt!! :)
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Old 06-09-2011, 04:06 AM
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brave woman (you)...lucky woman (Dr.)!
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Old 06-09-2011, 04:12 AM
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I think quilting is good for both the mind and the body! Anything we love doing is bound to be a benefit! Hugs!!
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Old 11-22-2011, 02:30 PM
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I have Crest Scleroderma.
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