Originally Posted by Juli

Thank you everyone! I am hoping for answers. I have been having them almost weekly for almost a year and a half now, so I am hoping they can figure something out. I have gone through this monitoring once already back in June and he didn't figured it out and during the time, he was talking with the Doctor at OHSU, planning the visit up there, that's why he did the video monitoring to get it done with, so I wouldn't have to have it done again, up there, but they are scheduleing it again for 5 days. It was supposed to be just a one day visit. This hospital is two hours away from home in Portland, Oregon. My mom is probably going to have to stay with me and right now on top of that, my sister is on bed rest with her pregnancy, so she is also needed here too.

Originally Posted by starshine

Got home and my SP package was waiting for me, I got an awesome package from my new friend Celia, no board name yet though.
She sent a wonderful note, a canvas picture of the lighthouse at Cape Hatteras, 5 pastel color FQs, an honorable membership to "the sisterhood of quilters", Swirly Girls pattern "perfect ten", a "Moments for Friends" book with 30 days of a story, quote and bible verse, (I love inspirational quotes-but I didn't have that on my survey) a cute, small journal, a flower tin with a package of needles and a used needle case.
Its too dark to take a pic but I will tomorrow. Thanks New Friend Celia! :P

Originally Posted by quiltnut4ever

Juli I'm sending you hugs and hopefully the doctors can find what is wrong. {{{{{HUGS}}}}}}

Originally Posted by Juli

I just got a call from my Doctor's office the other day. He is going to stick me back in the hospital for another 5 days because my seizures haven't stopped, so he wants me monitored again to see if he can find out more answers at with a Specialist monitoring at Oregon Health Science Univeristy. I had no idea he was going to have me do all this again, but he decided a long time ago he was going to do this again, but never told me.