My DD friends had a little girl that had this syndrome and she lived 5days. They did not even find out about the defects until the 8th month(dr. Fault) I made them a soft flannel taffy quilt and embroidered her name and birth date on it. They have kept the blanket. BTW, they have since had a beautiful baby girl who just turned 1. Whatever you decide to do will be greatly appreciated by the parents.