If you have contact with that family & they have an interest in talking to someone who has "been there & done that", I'd be more than happy to talk with them sometime. I've been a contact person for our spina bifida clinic for several years - they allow new families to call me to learn more about our experiences. Every child with spina bifida is different, even if the same vertebrae are involved. That's a fascinating part of the condition. My oldest & youngest (Salina is in the middle) are a total of 39 months apart - mine weren't quite as close as theirs, but I was running in auto-pilot for several years!
Originally Posted by
jillnjo
I'm so happy for you both! To work together is fun and encouraging for your daughter, I'm sure. We just heard of a young family who had their 4th little girl this week and she has spina bifida along with other problems-been praying for them. They knew the problem was there before Autumn was born at a Children's Hospital, but it looks like a difficult road ahead. Their youngest at home is less than a year old!! My mother has been making yo-yos and wants to make toy animals with them.