Hello lynnfaye!
I have fibromyalgia and lupus too. There are a few of us on here who suffer like you do--so I guess, misery loves company...
I love to quilt and sew, but I also need to listen to my body--sometimes it just screams--and when that happens, I have to let everything wait until I feel better.
Hopefully those of us with this malady can share tips and tricks we've learned along the way, so that we can enjoy our craft more fully.
Right now I'm in a bit of a "fibro-fog"--those of us who suffer from it will know what I'm talking about--but when I feel better, I know I will be able to come up with ideas of how I handle my diseases and still quilt. One thing I can share right now is to only do at one time what you know your body can handle--don't push past what you are comfortable doing. If you do, you will pay later! One of the things that I use to gauge how I'm doing is, if I start making mistakes over and over again, I know it is time to stop.
Welcome to the board--and I hope today is a good day for you!