Originally Posted by butterflyquilter
Most people really don't understand how you can hurt so much with this disease. They can't fathom that the pain never goes away completely--just different degrees of pain. Do most of you find it hard to sleep at night? I think that is partly why I am so exhausted all the time.
when the sleep gets bad..i go on a med just for a few weeks or a month..i don't take it regular.
Any illness, where you don't "look sick" is hard for anyone to understand..