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Mousie 06-13-2009 06:17 PM


Originally Posted by sunnyhope
I think your a wonderful person; when i first joined here you were one the first ppl to offer help, maybe some of you remember me asking about some help for my friends who lost everything they owned in a fire; i m happy to report they are doing very well now :)

anyway adhd add etc, seems like many ppl in here have that or some other illness but who cares, everyone here cares so much beyond that and we share a hobby that we all love and we are still ppl even with adhd or artheritus like i have.
well actually i have astma, used to have epilepsi but outgrown that yippi, also have artheritus, wiplash and firbromyalgia, many seem to have fibromyalg in here. i also have p.o.s so what we all love sewing/quilting/ crafts :mrgreen: :mrgreen: :mrgreen: :mrgreen:

thank you for being my friends :wink:

I know you told us, when you first came on board, that your kitty cat's name was sunnyhope, but it fits you. I know some of the pain you endure and you keep going. I try not to complain, and some days, I do ok. Quilting and creating have been a real blessing to me, and I know you feel the same way. sunnyhope, you are a very caring person :D

Mousie 06-13-2009 06:20 PM


Originally Posted by Mplsgirl
QC - I told you a while ago I thought we would be great friends. Now I know it more than ever. What a spectacular, funny, smart, woman you are. I've never met you other than this board, but I love you. Pam Nix

girlfriend...you must be trying to make my hubby's day...bc I am almost speechless!...um, i mean*, Jeff, LOL! I love you too :wink: :mrgreen:

Mousie 06-13-2009 06:29 PM


Originally Posted by barnbum
We are lucky you're here. :D
I'll get to know you better this summer... I'll be here more often. :wink:

Is it my birthday, or did i win the lottery? lol! :mrgreen:
Each and every reply just has me going...oh, aww, oh my goodness...on and on...karla, you, my friend are also for the underdog, and a stand up, kind of person. ppl, have said here, that I was brave, but your an example of a person, that will speak up for what they believe in. I think that is so admirable and all round awesome! :D

crossginny 06-13-2009 06:39 PM

Thanks, QC. : )
There were lots of days that our mantra was: Someday they will be grown men who are WONDERFUL......and the world will see how wonderful they are then. Until then, we just hung on....sometimes by the skin of our teeth!!
: ) as in almost everything else, "No where does it ever say 'and it came to stay'--it always says: "And it came to pass...." this too shall pass....just not soon enough!!

I too have had many struggles with depression...that deep dark monster will NOT win......I refuse to allow it. Many times it has been a minute by minute victory ......but a victory none the less.

I've learned that I have to put positive things in place in my life and return to them daily. Our younger son has also learned this and implemented it in his life too. Our older one is still learning......{always had to get his attention before he would listen.....} lol.

It is wonderful to be part of this group that is so loving and accepting of all. It's great to be loved where I am and not only where someone else thinks I should be. : )

Hugs and many thanks to all!
Ginny

mkanderson 06-13-2009 06:56 PM


I used to have panic attacks, the worst were in my sleep! I would physically struggle to wake myself up...that's a pretty awful thing to live with, right there, so I have nothing but hugs and compassion for anyone who deals with them.
I still have the sleep ones occasionally, but thank goodness they are a lot further apart and fewer now. I think these are due to allergies, mostly. You are not alone, and your not different mk, your unique.
We are all like snowflakes, beautiful and unique, similar but not identical. :D [/quote]
You know, I didn't really think about the allergies until you said that! I have them very bad! Sinus problems got so bad that it built infection up in behind my eardrum and blew a hole in the eardrum. Can't hear out of the right ear. And yes, I have woke up fighting with the covers, trying to get them "off"me! DH almost afraid to sleep with me! :lol:

tlrnhi 06-13-2009 07:00 PM

QnC....you just keep doing what you are doing.
If you changed, you wouldn't be you.
Plus, we love you just the way you are! :) :) :)

sunnyhope 06-14-2009 07:58 AM


Originally Posted by quiltncrazy

Originally Posted by sunnyhope
I think your a wonderful person; when i first joined here you were one the first ppl to offer help, maybe some of you remember me asking about some help for my friends who lost everything they owned in a fire; i m happy to report they are doing very well now :)

anyway adhd add etc, seems like many ppl in here have that or some other illness but who cares, everyone here cares so much beyond that and we share a hobby that we all love and we are still ppl even with adhd or artheritus like i have.
well actually i have astma, used to have epilepsi but outgrown that yippi, also have artheritus, wiplash and firbromyalgia, many seem to have fibromyalg in here. i also have p.o.s so what we all love sewing/quilting/ crafts :mrgreen: :mrgreen: :mrgreen: :mrgreen:

thank you for being my friends :wink:

I know you told us, when you first came on board, that your kitty cat's name was sunnyhope, but it fits you. I know some of the pain you endure and you keep going. I try not to complain, and some days, I do ok. Quilting and creating have been a real blessing to me, and I know you feel the same way. sunnyhope, you are a very caring person :D


You are so sweet but if anyone is caring its you
You are right about the pain, most days are painful but you kinda have to focus on other things; like i cant walk very far at the time so i have a wheelchair scooter and instead of not going out at all i can still go out with my friend who i share house with or and her twin girls, they are even thought have to drive the scooter on their own in case something happends.

so why do you think sunnyhope fits me then?

Mousie 06-14-2009 12:43 PM


Originally Posted by crossginny
Thanks, QC. : )
There were lots of days that our mantra was: Someday they will be grown men who are WONDERFUL......and the world will see how wonderful they are then. Until then, we just hung on....sometimes by the skin of our teeth!!
: ) as in almost everything else, "No where does it ever say 'and it came to stay'--it always says: "And it came to pass...." this too shall pass....just not soon enough!!

I too have had many struggles with depression...that deep dark monster will NOT win......I refuse to allow it. Many times it has been a minute by minute victory ......but a victory none the less.

I've learned that I have to put positive things in place in my life and return to them daily. Our younger son has also learned this and implemented it in his life too. Our older one is still learning......{always had to get his attention before he would listen.....} lol.

It is wonderful to be part of this group that is so loving and accepting of all. It's great to be loved where I am and not only where someone else thinks I should be. : )

Hugs and many thanks to all!
Ginny

Your so welcome, and now you know, you have ppl that will listen for those days, when the monster isn't winning, but is 'looming'. we all have them, to one degree or another. hugs, you are not alone. :D

Mousie 06-14-2009 12:47 PM


Originally Posted by mkanderson
I used to have panic attacks, the worst were in my sleep! I would physically struggle to wake myself up...that's a pretty awful thing to live with, right there, so I have nothing but hugs and compassion for anyone who deals with them.
I still have the sleep ones occasionally, but thank goodness they are a lot further apart and fewer now. I think these are due to allergies, mostly. You are not alone, and your not different mk, your unique.
We are all like snowflakes, beautiful and unique, similar but not identical. :D

You know, I didn't really think about the allergies until you said that! I have them very bad! Sinus problems got so bad that it built infection up in behind my eardrum and blew a hole in the eardrum. Can't hear out of the right ear. And yes, I have woke up fighting with the covers, trying to get them "off"me! DH almost afraid to sleep with me! :lol: [/quote]

I think my hubby would feel like this, bc I don't thrash as much as i try to scream. He is so hard of hearing, and sleeps with bi-pap on. It makes it very scary for me, as I am struggling to breath, as I am provoked into very bad dreams. I'm thankful, it has gotten some better. Wish hubby, was an in-house kitty, person. Maybe kitty cat would wake me up.

Mousie 06-14-2009 12:49 PM


Originally Posted by tlrnhi
QnC....you just keep doing what you are doing.
If you changed, you wouldn't be you.
Plus, we love you just the way you are! :) :) :)

aww, now i is going to....run around the board and see if I can stir something, LOL!!! Terri, you have gave me many a good belly laugh over the nine months I have been here. I love you, just the way you are too! :D

Mousie 06-14-2009 12:52 PM

so why do you think sunnyhope fits me then?

I think it fits you, not bc we can control our pain, or how we feel about it.
Pain is not fun, and there is no pretending that it is, but you keep going, and you don't take it out on ppl. You do what you can to cope with it, and that is the best that we can do. We just keep on trying :thumbup:

QuiltMania 06-14-2009 04:52 PM

"We are all like snowflakes, beautiful and unique, similar but not identical."


That's a wonderful expression!!! It's going up in my classroom in September.

Mousie 06-14-2009 05:18 PM


Originally Posted by QuiltMania
"We are all like snowflakes, beautiful and unique, similar but not identical."


That's a wonderful expression!!! It's going up in my classroom in September.

thank you, quiltmania...I was inspired to write it, while replying. It is kind of nice, now that you mention it. I have sayings all in my quilting cave, think that one's going in there too. Maybe even here in pc room.
I like motivational things. :D

jacquemoe 06-14-2009 05:29 PM

I know someone that has it.......................................
MY DH!!! It's very frustrating for me.

Mousie 06-14-2009 07:02 PM


Originally Posted by jacquemoe
I know someone that has it.......................................
MY DH!!! It's very frustrating for me.

I can well, understand your frustration. I have it, and have to add all details...hubby has it, and impatient, and wants me to get stuff, with next to no details...aahhh!!!...and that's just the beginning! :roll: :D

Quilting Aggi 06-15-2009 03:00 AM

You are a very brave lady and I commend you for all you have done and said in this post!
You are a special gal and I'm proud to call you friend :)

Cheers
Andrea

Mousie 06-15-2009 04:00 AM


Originally Posted by Quilting Aggi
You are a very brave lady and I commend you for all you have done and said in this post!
You are a special gal and I'm proud to call you friend :)

Cheers
Andrea

Andrea, I feel the same way. I love all my quilting friends. Each and every one is special in their own way to me. You are very sweet.
Trevor is one lucky guy, and you can tell him you have back up :wink:
I guess this is the part of life, where the little girl, afraid to talk,
becomes the woman, who stands up and speaks out....
and out, and out and out! LOL :lol: ...I AM FREE TO BE ME! :mrgreen:

k3n 06-15-2009 05:44 AM

C- I always knew you were special but you've outdone yourself here, girl!
And all I can do is repeat ten thousand fold all the love and admiration already expressed above!

And why should ADD be seen as such a negative thing anyway? I don't have it but have had friends whose kids have had it and I know it's often very upsetting and frustrating for the - don't want to use the word sufferer or worse, victim - let's say person who has it :D as well as their nearest and dearest; but if your qualities are the result of ADD then there is a most definite positive aspect too! Your quickness of mind, your wit, your warmth, your speed in getting right to the crux of where a person is coming from; oh, i wish an ocean didn't divide us, my friend!

As for depression, I spent the best part or a year on Prozac for reactive clinical depression - it was hell. I lost whole days, just staring at the wall. And coming out of it, you just think you're better and something throws you striaght back down in the pit - like going back to work after weeks off - I was in PR - and being told in the first five minutes to phone an advertiser and negotiate space - oh, I couldn't, i ran away and didn't go back for another week; it's hard to imagine the person I am now doing that, but that was me!

The ppl on here are wonderful - caring, supportive, witty and bright! I don't know if that's this board - like attracts like, or something in the nature of quilters? Who cares! I'm just glad I found you all - and C, you especially (no offence everyone else :D )

Love Kathryn

Marcia 06-15-2009 06:08 AM

QC--The world (and this board) is a better place because of people like you. Thanks for sharing so much of yourself. Relaying our own personal experiences is a wonderful, selfless way to educate others-especially those topics that some people find a little "taboo".

You always make me smile-I am so glad you found us :lol:

Mousie 06-15-2009 06:13 AM


Originally Posted by k3n
C- I always knew you were special but you've outdone yourself here, girl!
And all I can do is repeat ten thousand fold all the love and admiration already expressed above!

And why should ADD be seen as such a negative thing anyway? I don't have it but have had friends whose kids have had it and I know it's often very upsetting and frustrating for the - don't want to use the word sufferer or worse, victim - let's say person who has it :D as well as their nearest and dearest; but if your qualities are the result of ADD then there is a most definite positive aspect too! Your quickness of mind, your wit, your warmth, your speed in getting right to the crux of where a person is coming from; oh, i wish an ocean didn't divide us, my friend!

As for depression, I spent the best part or a year on Prozac for reactive clinical depression - it was hell. I lost whole days, just staring at the wall. And coming out of it, you just think you're better and something throws you striaght back down in the pit - like going back to work after weeks off - I was in PR - and being told in the first five minutes to phone an advertiser and negotiate space - oh, I couldn't, i ran away and didn't go back for another week; it's hard to imagine the person I am now doing that, but that was me!

The ppl on here are wonderful - caring, supportive, witty and bright! I don't know if that's this board - like attracts like, or something in the nature of quilters? Who cares! I'm just glad I found you all - and C, you especially (no offence everyone else :D )

Love Kathryn

dang, I don't know whether to tear up from sheer happiness...or snoopy dance, bc this is beautiful!
K, I knew from the very beginning that we had some kind of bond. Call it kismet, intuition...probably repeating myself...kindred spirits...not exactly alike, but we get each other...we complement each other, on some level that touches my soul! you have that effect on ppl.
I watch you, just flit around this board, and every where you go, ppl just light up, to talk to you. you have charm and talent, and very intelligent.
I have learned so much from you, and you always broaden my thinking...it's like having a lite brite in your head, that lights up, according to the incoming data...and you light up, my whole board! your like fabrics to me...I see your name, and click and go, "oh, goody! it's K!"
silly me, huh? I'm like a golden retriever, and if there wasn't an ocean between us, you can bet your sweet bippy*, this is one quilting buddy that would be on your doorstep in a heartbeat.
I'd get to meet the munchkins, dougal dog, Barney, Handsome Hans...see your garden and your chooks, and all your quilties!!!
If somehow, I ever win a trip anywhere, it's going to be France. I am so blessed to have met you, and be counted as one of your many friends. I love you, K! :mrgreen:

k3n 06-15-2009 07:50 AM

:oops: :oops: :oops:
:D :D :D
:cry: :cry: :cry:

Mousie 06-15-2009 08:37 AM


Originally Posted by Marcia
QC--The world (and this board) is a better place because of people like you. Thanks for sharing so much of yourself. Relaying our own personal experiences is a wonderful, selfless way to educate others-especially those topics that some people find a little "taboo".

You always make me smile-I am so glad you found us :lol:

thank you so much, Marcia! :D
I have to say, I was always for the underdog, and kids are so special to me. This post was inspired...or rather, I was driven, to write it, bc of all the kids out there, that have no voice. There is another post about add, and I was so happy to see it, and applaud the mom for posting it.
I just got so stirred up, about having this, and actively learning how to cope, I have always wanted to do more. I don't know what else I can do, to help others with it, but this is a start. The first thing I want children and the adults, who, like me, didn't know they had it, until they were grown, is there is no reason to be ashamed! Embrace your differences, and learn how to make them work for you. We are what we are, and there is a reason for it. Learn to laugh at your goofs, and keep on going. :D

Mousie 06-15-2009 08:41 AM


Originally Posted by k3n
:oops: :oops: :oops:
:D :D :D
:cry: :cry: :cry:

you deserve every word, girlfriend! :XD:

Debbie1 06-18-2009 10:44 AM

I'm so glad you were finally diagnosed with it. I think my son has ADD, but he was never diagnosed with it. The schools never recognized that he had it, he went into the Army and they never diagnosed it. But after reading up on it, he has so many of the classic symptoms. He will tell you there's nothing wrong. I just wonder how his life would have turned out if he'd been on medication years ago. I appreciate you for telling your story!

Mousie 06-18-2009 12:00 PM


Originally Posted by Debbie1
I'm so glad you were finally diagnosed with it. I think my son has ADD, but he was never diagnosed with it. The schools never recognized that he had it, he went into the Army and they never diagnosed it. But after reading up on it, he has so many of the classic symptoms. He will tell you there's nothing wrong. I just wonder how his life would have turned out if he'd been on medication years ago. I appreciate you for telling your story!

I am glad that you are looking at this disorder and trying to educate yourself about it. Society has probably taught your son, that having a.d.d. is a shameful thing, not manly. I too wonder, how my life might have been different, had I been diagnosed as a child. I'll never know for sure, but it could have saved me much, much suffering.
There is no way, my parents could have had an inkling, I barely came across anything about it myself, with my own daughter, and thought the school system would tell me. They are not allowed to. Good for you, that you at least are open minded about the possibility of your son having it.
Support from loved ones is so important.
Your son will have to want to know more about add on his own, and he may not, do that, until he has a child. Just be there for him, if the day ever comes.
It took a long time, for my family...my husband! and my children, to be ok, with mine. Thank you for sharing, Debbie. :D

Mousie 06-18-2009 12:11 PM

Just writing some information:
I was told by the principal of our school here, that teachers are not allowed, at least in Florida, to tell a parent there child has a.d.d.
I guess, after she told me and I had time to think about it, I understand why, but my girls are all grown up, and I thought if there was a problem, that they would tell me.
It is still up to a parent to figure out their child is suffering. If the child has the type I do, and as a child, I held everything in, and was able to hyper focus in the classroom when the teacher talked...out of high anxiety...it took me forever to get homework done. i developed ocd coping behaviors, without knowing it of course, in a desperate attempt to get things done. I made myself responsible for everything around me.
I became guilt ridden and fearful of failure, which only added to the struggle of coping.
On the outside, i seemed quiet and shy. On the inside, I was usually racing and depressed or would fall into hysterical laughing fits and cry myself to sleep.
Sometimes, i was spaced out and could barely remember my name, or what I was doing.
I walked and talked in my sleep and wet the bed until I was nine. On occasion I still did, once in a blue moon. I have not wet the bed as an adult, but I have walked in my sleep, and apparently got a saucer out of a cabinet, bc I woke up while I was putting it on a bedside table.
That's just one story.
A.D.D. comes under the heading General Anxiety Disorder, and the person can suffer from fitful sleep, nightmares and anxiety/panic attacks, just to name a few things.
That person in your family that you think is just lazy or a bum, freeloader, doesn't care, argumentative, rebellious and oppositional, or a bully and relentless fight starter?...may be suffering.
It looks so different on different ppl.
They can be anything from a wall climber to a space cadette. There is help, and it is sooo much help, it is unbelievable, how much better the person feels. It usually takes some counseling to help the person increase their confidence, by learning about their disorder, and how to get over past mistakes. It also helps tremendously to have familial support.
Lives can actually start to change from picking up a book, or making an appointment with a GOOD doctor. I have the best. :D

Joan 06-18-2009 12:19 PM

Here in California, it is the same. Teachers and/or school psychologists are unable to diagnose ADHD. In fact, the only thing they can do is tell parents that the child exhibits behaviors that may indicate ADHD and to go to a doctor. Since there is no hard and fast test to indicate ADHD, the responsibility falls on the doctor upon listening to the parent's concerns to make a diagnosis. As you may know, some doctors are not sensitive to ADHD---this is NOT a physical problem but a neurological one. Unfortunately, there are not enough psychiatrists out there who really KNOW more about this disorder.

Botttom line---If you think your child has a problem and your doctor dismisses your concerns, find another doctor.

Mousie 06-18-2009 12:29 PM


Originally Posted by Joan
Here in California, it is the same. Teachers and/or school psychologists are unable to diagnose ADHD. In fact, the only thing they can do is tell parents that the child exhibits behaviors that may indicate ADHD and to go to a doctor. Since there is no hard and fast test to indicate ADHD, the responsibility falls on the doctor upon listening to the parent's concerns to make a diagnosis. As you may know, some doctors are not sensitive to ADHD---this is NOT a physical problem but a neurological one. Unfortunately, there are not enough psychiatrists out there who really KNOW more about this disorder.

Botttom line---If you think your child has a problem and your doctor dismisses your concerns, find another doctor.

Joan, your bottom line is excellent advice! When you meet a doctor like mine, who is trained and experienced to know a.d.d., you'll be amazed how far we have come.
Many, or most, of the M.D.'s I have had, still don't know a thimbleful about it. How do I know...by the way I was treated, and they knew i had it. I don't take mistreatment anymore. I am a good patient too.
I can only imagine how ppl, with different personalities have been treated. Medicine can help the person, they have to work on their personal choices of behaviors.
No pill ever turned anyone into a nice person, so don't tell your loved one, who is on medication, when they disagree with you...to go take a pill, been there....it's not only unkind, or unfair, it's mean.
Joan, I appreciate your input immensely. You can tell it doesn't take much, lol, to get me going on this subject. It's very important to me.
I am getting so much out of this thread though. thanks. :D

amma 06-18-2009 09:05 PM

I appreciate all of the information in this thread. I did not realize how many different symptoms there are. I am grateful to know these so if my grands or any of the other little ones I am around display these, I am hoping that I will be able to recognize them now (or the adults, too.) Thank you all for posting this, I know it is not an easy subject to discuss, but I really thank you all for this important knowledge.

Rhonda 06-18-2009 09:40 PM

I wish I had known more about ADD and ADHD when my son was growing up. I think it would have made a differance in how he learned to cope. He has learned some coping tactics and his wife helps take up the slack as I have done for my husband who also shows the symptons but he has other health issues that make it hard to know what is causing what.

I have enjoyed hearing others point of view and I have learned a lot from listening to you QC. Everything I can learn helps me to understand my grands and why they act the way they do. I have two that are diagnosed with ADHD with emphasis on the hyper!!

Thanks to all for discussing this and sharing. It is much appreciated!!

fktsewing 06-19-2009 08:44 AM

You go girl!!!! This is one of the reasons schools need to stop trying to make everyone act and think alike. MY daughter is 33 now and a mom, we struggled through her school years---teachers said she was very bright, just lazy all through grade school & junior high. They had to practically torture her to get her to read. Stupid me, believed them because she was in a girls group of Job's Daughters and had to memorize pages for their meetings and did it quite well. Finally in her first year of highschool, her english teacher contacted me and told me that she was flunking that subject, but he wanted to have her tested because he was sure she had dyslexia. She tested and guess what, she had a form that reversed whole words. They put her in a class to help her with her problem and within 6 months we could not stop her from reading and her grades improved. Found out the reason she knew her memory work for Jobies was because I was reading it to her and having her repeat it. Years later a doctor diagnosed her with bi-polar as well. She is not on any meds, but has learned to be able to control it better with age. Now fast forward to my grandaughter---had trouble sitting still in class and could only focus for a certain period of time. Had trouble retaining what she read or wrote down. Had her tested in grade school and she has ADD
My daughter refused to put her on meds because the meds totally ruined my nephew after he was diagnosed. He is pretty much a zombie today. We struggle a little, but her teachers are infomed at the beginning of each new school year and that also helps. The only problem we have had is with her principal. She has had her since 4th grade and this woman should not be in that position. She only likes and caters to the normal, good kids, and thinks every parent should be in the PTA and volunteering at the school. A little hard when you are a single parent and work full time. Yes, we have complained and my daughter is filing charges with the school board as we have discovered we are not the only ones who see the problem. Seems like this is the norm out there. Besides, we all have our quirks , I don't have either one of those, but I do have maniac depression and that is a whole other battle.But it seems that no one really understands it unless they have it or live with someone who has it. My heart goes out to anyone that struggles with any of these things. We just keep taking one day at a time and one situation at a time. I tell my girls, just be yourself, I love you no matter what, but I am always here to help.

Mousie 06-19-2009 01:07 PM


Originally Posted by fktsewing
You go girl!!!! This is one of the reasons schools need to stop trying to make everyone act and think alike. MY daughter is 33 now and a mom, we struggled through her school years---teachers said she was very bright, just lazy all through grade school & junior high. They had to practically torture her to get her to read. Stupid me, believed them because she was in a girls group of Job's Daughters and had to memorize pages for their meetings and did it quite well. Finally in her first year of highschool, her english teacher contacted me and told me that she was flunking that subject, but he wanted to have her tested because he was sure she had dyslexia. She tested and guess what, she had a form that reversed whole words. They put her in a class to help her with her problem and within 6 months we could not stop her from reading and her grades improved. Found out the reason she knew her memory work for Jobies was because I was reading it to her and having her repeat it. Years later a doctor diagnosed her with bi-polar as well. She is not on any meds, but has learned to be able to control it better with age. Now fast forward to my grandaughter---had trouble sitting still in class and could only focus for a certain period of time. Had trouble retaining what she read or wrote down. Had her tested in grade school and she has ADD
My daughter refused to put her on meds because the meds totally ruined my nephew after he was diagnosed. He is pretty much a zombie today. We struggle a little, but her teachers are infomed at the beginning of each new school year and that also helps. The only problem we have had is with her principal. She has had her since 4th grade and this woman should not be in that position. She only likes and caters to the normal, good kids, and thinks every parent should be in the PTA and volunteering at the school. A little hard when you are a single parent and work full time. Yes, we have complained and my daughter is filing charges with the school board as we have discovered we are not the only ones who see the problem. Seems like this is the norm out there. Besides, we all have our quirks , I don't have either one of those, but I do have maniac depression and that is a whole other battle.But it seems that no one really understands it unless they have it or live with someone who has it. My heart goes out to anyone that struggles with any of these things. We just keep taking one day at a time and one situation at a time. I tell my girls, just be yourself, I love you no matter what, but I am always here to help.

Sometimes, it's just plain hard being a parent, and sometimes, it's just plain hard being a kid.
I am so glad that your daughter was finally able to have some answers, and that made you all more aware, when your granddaughter came along.
I was said to have manic depression for many years. They wrote, high functioning hypo-manic in my file. A counselor once let me see a paragraph, (although she wasn't supposed to), and someone had detected some adhd, but didn't tell anybody or do a doggone thing about it! that's incomprehensible to me! He worked in mental health!
It's tough to make these decisions, and for those that can cope without the meds, I hope and pray they do ok.
For those like me, that just have to have them, I hope they do well, and find understanding from their families. They have a tough row to hoe, either way, but with meds, eventually for most, it gets easier.
I always tell ppl, (the ones I have confided in)...don't underestimate the power of counseling etc. Pills are just pills, and can only do so much.
These kids, and adults, by the time they find out they have a disorder, have much to overcome. Sometimes, the parents struggle to forgive themselves, too. thanks for your support, fktsewing :D

Rhonda 06-19-2009 02:56 PM


Originally Posted by fktsewing
You go girl!!!! This is one of the reasons schools need to stop trying to make everyone act and think alike. MY daughter is 33 now and a mom, we struggled through her school years---teachers said she was very bright, just lazy all through grade school & junior high. They had to practically torture her to get her to read. Stupid me, believed them because she was in a girls group of Job's Daughters and had to memorize pages for their meetings and did it quite well. Finally in her first year of highschool, her english teacher contacted me and told me that she was flunking that subject, but he wanted to have her tested because he was sure she had dyslexia. She tested and guess what, she had a form that reversed whole words. They put her in a class to help her with her problem and within 6 months we could not stop her from reading and her grades improved. Found out the reason she knew her memory work for Jobies was because I was reading it to her and having her repeat it. Years later a doctor diagnosed her with bi-polar as well. She is not on any meds, but has learned to be able to control it better with age. Now fast forward to my grandaughter---had trouble sitting still in class and could only focus for a certain period of time. Had trouble retaining what she read or wrote down. Had her tested in grade school and she has ADD
My daughter refused to put her on meds because the meds totally ruined my nephew after he was diagnosed. He is pretty much a zombie today. We struggle a little, but her teachers are infomed at the beginning of each new school year and that also helps. The only problem we have had is with her principal. She has had her since 4th grade and this woman should not be in that position. She only likes and caters to the normal, good kids, and thinks every parent should be in the PTA and volunteering at the school. A little hard when you are a single parent and work full time. Yes, we have complained and my daughter is filing charges with the school board as we have discovered we are not the only ones who see the problem. Seems like this is the norm out there. Besides, we all have our quirks , I don't have either one of those, but I do have maniac depression and that is a whole other battle.But it seems that no one really understands it unless they have it or live with someone who has it. My heart goes out to anyone that struggles with any of these things. We just keep taking one day at a time and one situation at a time. I tell my girls, just be yourself, I love you no matter what, but I am always here to help.

I have mentioned above about my son and his troubles when he was put into 1sr grade he was tested for a learning disability. I tried to tell them then I thought he had dislexia but I was told in 83 that dyslexia was not a
medical diagnosis and could not be in his evaluation. He had trouble reading because he could not tell the differance between d p and b. He could not tell between w and m He wrote his last name Moodswall instead of Woodsmall. He had a hard time with spelling. It was virtually impossible for him because he could not remember them. As soon as he memorized them he lost the memory.
He had a real hard time through school but the teachers always said he tried hard and was a joy to have in class. He is a gentle giant. He is now 31 and 6' 4' Has a theory that you should always let things you can't do anything about slide off your back. Wish sometimes I could do that more!!

If it hadn't been for computers he would never have made it through school! That and the LD teachers. Some teachers are great and some shouldn't be teachers!!!!
I had to go to bat for him and keep on top of what the teachers were doing with him. You as a parent have to fight for your child to have the best education possible and stand up for your child's rights!
My daughter has two sons with special needs and a daughter and she has used my experiences with her brother as a spring board to take control of the situations and not give in!! She has had to fight some ongoing battles for her children to get the teachers and principle to do what they are required to do by law in providing a good and healthy education!(sorry my soap box~ getting down now!)
They gave him a spell checker he could cary like a calculator and that got him through a lot of term papers. They made allowances for punctuation and things like that because he just could not do it!
He still does his checkbook in his head because he can't deal with writing everything down.
He reads a few science fiction books sometimes but he is not and never will be a reader! I used to try to get him to understand that books can take you to new places but he was too bogged down in the pronouncing each word to really get the concept.
These kids do struggle alot and it is through everybody teaching others what these kids go through that helps change the climate we live in. I find myself teaching people all the time about autism and ADHD.
When more people understand the problems these kids face it will change the school environments and the public one person at a time!

Quilt4u 06-19-2009 03:32 PM

You go girl. My DD is ADHD and has depression with multiple learning disabilities.

JoanneS 06-19-2009 09:16 PM

QNC - I can't believe I didn't find this thread until tonight! You started something wonderful :thumbup: :thumbup: You've been so much fun from the first time I read one of your postings, but this is the best yet :wink: :wink: :wink: As I said to you before, we're both SURVIVORS :D :D :D

Like so many others who have responded to you, my family is dealing with ADHD. My son was probably ADHD, and his sons are, too. I'm OCD. We're a family of 'A' personalities, all over-achievers, often verbally banging heads with each other :lol: Never a dull moment at our family get-togethers and Holiday dinners :wink: :evil: :lol:

My 2 grandsons are autistic and ADHD, both need to be on meds to be calm enough to learn :shock: They're 8 and 10. The 10 year old is also OCD. He is just beginning to put words in real sentences. Until THIS MONTH he only used words to get something he wanted (snack, cookie, tickle, outside). He can't speak for himself to tell anyone what is wrong :cry: - so DDIL is his interpreter. She is a fierce lioness - NO ONE stands between her and what her sons (both of them) need.

They just moved from IL to VA. The VA school disapproves of ADHD meds and wants to take the boys off of them. My son and DDIL said, calmly and clearly, "WE'RE the parents. WE decide about his meds."

It takes YEARS of behavior-specific, communication-specific and other training to help a child like our 10 year old. His 8 year old brother is less affected, but it's taking years for him. too. He speaks well, so sometimes his needs are ignored because he doesn't seem 'autistic', but he definitely needs behaviorial and other training. Both boys are in special ed classes, tho' the IL school system was trying to put the 8 year old in a 'typical' classroom with an aide. We use 'typical' not 'normal' because the 'n' word simply doesn't apply to the autism spectrum. VA recognizes his special needs and wants to have him in some special ed classes for teacher training this summer - extra summer school which will be VERY GOOD for both him and mom, and give his older brother more one-on-one time with mom.

The boys had an excellent doctor in Illinois - a neurologist with a specialty in autisim. Now we have to find someone like him in VA - in Fairfax County or the area nearby - the Greater Dulles Airport area - Johns Hopkins Hospital. IF ANYONE HAS A RECOMMENDATION, PLEASE PM ME.

Bless you, QNC for starting this discussion :-P I think it will probably go on for quite a while. Your 'coming out' has served as a great stimulus for us all.

Mousie 06-20-2009 04:48 AM

JoanneS wrote:
....They just moved from IL to VA. The VA school disapproves of ADHD meds and wants to take the boys off of them. My son and DDIL said, calmly and clearly, "WE'RE the parents. WE decide about his meds."

It takes YEARS of behavior-specific, communication-specific and other training to help a child like our 10 year old. His 8 year old brother is less affected, but it's taking years for him. too. He speaks well, so sometimes his needs are ignored because he doesn't seem 'autistic', but he definitely needs behaviorial and other training. Both boys are in special ed classes, tho' the IL school system was trying to put the 8 year old in a 'typical' classroom with an aide. We use 'typical' not 'normal' because the 'n' word simply doesn't apply to the autism spectrum. VA recognizes his special needs and wants to have him in some special ed classes for teacher training this summer - extra summer school which will be VERY GOOD for both him and mom, and give his older brother more one-on-one time with mom.

The boys had an excellent doctor in Illinois - a neurologist with a specialty in autisim. Now we have to find someone like him in VA - in Fairfax County or the area nearby - the Greater Dulles Airport area - Johns Hopkins Hospital. IF ANYONE HAS A RECOMMENDATION, PLEASE PM ME.

Joanne, I just can't believe the unmitigated gall of the school system butting in on a medical issue like this.
I like what one person said, about their teachers, etc. can tell a parent that a child seems to be displaying symptoms that might indicate ADHD and they should contact a professional for testing, to be sure.
I don't know if I can be of any help, but I can try...referring to your looking for a good doctor in the area your grandchildren live in. I can inquire at my doctor's office. He is an excellent doctor, and any time I went to a new medical doctor, once I said, I was working with this therapist...they didn't mess with that. He is highly esteemed, and respected. In 24 years of being, 'in the system', I have never seen his match. I'm sure there are some others just as good, but not here.
I appreciate your support, big time! hugs, we be friends from the very beginning :wink:
I'm thrilled with all the support on this board, and I am so happy that so much information has been added to this thread, for those that are curious, maybe knew a little bit, but needed some encouragement to actually look into these behaviors, disorders and issues. Thanks for adding to this thread, Joanne. I really appreciate it. :D

Mousie 06-20-2009 04:49 AM

more sharing:
I believe if one person in a family has something of the nature that requires medical expertise, it is a family affair.
You can't be in a family and have no effect on the other members. A lot of doctors and nurses are motivated to their professions, bc of a family member.
If ppl here, only knew how far I have come in six and a half years, with my doctor, they would realize how important it is, not to just let tom or sally "grow out of it."
I think I will expand here just a bit: six years ago, my family viewed me as being way too blonde to drive more than 30 minutes from home, by myself, bc I have gotten lost, - no sense of direction. I'd get lost in a round room!
I struggled to have a conversation with my doctors, bc I was severly intimidated by 'authority figures', and the anxiety would cause my sentence sequence to be all jumbled up. Much of the time, away from home, you couldn't understand too many of my sentences. I am a visual thinker, and if I couldn't, 'see it', I couldn't say it.
Imagine, trying to say:
I think I saw a red headed woman, with a little boy, get out of their car and go into that store.
It might have went something like this, for me:
I'm not sure, um, maybe this woman,...well she looked about 35, well, my niece is 35 and she looked older than her...my niece lives in Akron, haven't seen he in a while now...she has 3 kids,...their names are...what were we talking about....(trying to remember) (other person has to prompt)...oh, I was just sitting here in my car, and...we just got this car. We bought it...well we borrowed the money, don't know how we'll pay it back, they cut back on my...did you see that show last night with the dancing poodle...I've got to go feed my dog...he just got all his shots, the other day
I just made this up, as an example, and it doesn't even reflect what I was trying to show. You can actually understand the different phrases, even though, they veer off subject. I was much worse than this...and could not find the 'end' of a sentence...see? I got lost, just talking. Still do sometimes, depending on what I have been eating, (MCS-multiple chemical sensitivities), time of month, amount of sleep, (fibromyalgia),
etc. etc. etc. Hence the nightmares of driving with no brakes, bc I felt compelled to finish. If I didn't finish one topic...it would keep trying to breakthrough the next thing I was doing or saying...talking was like walking through mud. Even self-talk in my head.
Can you imagine, not being able to understand your own self-talk?
Ex: I need to get something out for dinner.
Me, six years ago, thoughts: I need...hey, I was looking for that...better put it up high bc of gbabies...Crystal will be coming over...this needs to go in washer...oh, I was going to get a band-aid for this scrape...hubby will be home, it's 3 pm...i fell asleep at 3 yesterday...this shoe is tearing up...should get some more, dont want to go outside barefoote...I remember that time...oh yeah, freezer...should get some meat...and this board was laying...there are boards all over front porch...I meant to sweep porch...did I feed the cat?...on and on...over one task.
Trying to get pictures of each thing, couldn't hang onto them...distracted at every turn. Couldn't cook a meal, without at least 3 timers!
well, enough sharing, LOL...hey, didn't mean to put ya to sleep, LOL!
yeah, those that knew me then, that were impatient? had to find a way, to GET AWAY...me? I had to finish what I was saying to them...so I was stuck, trying to finish in my head, long after they had left! :wink:
TTFN, QC

k3n 06-20-2009 05:45 AM

C - the more I know you, the more I like and love you!

Mousie 06-20-2009 05:57 AM


Originally Posted by k3n
C - the more I know you, the more I like and love you!

aww, me too...and your so honest and right, LOL!!! :mrgreen:

Rhonda 06-20-2009 07:57 AM

You make me think of my son. Sorry I write about him a lot but this is so like him!!
He did not talk alot but kept to himself. I would ask him to carry a dish to the kitchen and I would find it on the dining room table. He had gotten distracted and ended up outside in his own fantasy world. He used to battle the monsters(trees) with a branch(sword) and spend hours in his own world because it was less confusing than dealing with people.
He would have a hard time staying on task or getting through anything he was asked to do. When he cleaned his room he would throw everything good and bad into a garbage bag and be done! I lost a lot of legos that way! It was his way of coping with staying on task and not getting yelled at. I always had to go through his trash (If I caught it before he threw it away!) and go through it for the things we didn't want thrown out!
With my autistic grandson we have come to understand this is partly a lack of impulse control. If I think it i do it. So every thought that happens distracts because the impulse is to follow it instead of shoving it aside for what you were already doing.
With Zach this results in running to do what ever he has thought of. He outran his mom and his dad across a main road through three streets and was caught by a cousin at the bottom of the hill. He was going to go to the high school to play on the stage someone told him about. He is obsessed with putting on shows. He watches a lot of Wiggles and acts out what he sees. He is getting some better at controlling his impulses but this just happened two weeks ago.
So I completely understand the jumbled thinking! I cannot clean one room and then go onto another. I pick something up and go the kitchen to put it away and stop to put something there away and then that something takes me to another room and so on. I do get done! eventually!


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