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-   -   Need help with fibromyalgia and hands (https://www.quiltingboard.com/general-chit-chat-non-quilting-talk-f7/need-help-fibromyalgia-hands-t131014.html)

Quilterfay 06-17-2011 09:36 AM

I have Fibromyalgia as well. The computer mouse really bothers me. For some reason at home I hang on to it all the time when on the computer but do not do the same at work where I work on the computer all day. BAD HABITS!!

Yes men can get Fibro as well. A good friend of ours has it.

I was to see a specialist a few weeks ago and she told me my fibro is really bad. But I have lived with these very stiff muscles for so long I don't even think about it. She suggested that I start taking yoga to see if I can release my pelvic and leg muscles. Which are really causing me internal problems.

It is raining like crazy here in Saskatchewan. Good day to be in the house! Need to get off the computer and go and quilt..

Quilterfay

katrbee 06-17-2011 10:02 AM

I too have FM and carpal tunnel. Lyrica has been a godsend for me. I use braces every night, and day sometimes, too. I wanted to suggest also that you raise the height of your chair so you are working with hands below you waist as they are on the machine. It is harder to see so don't start bending over or more problems can develop, but it really helped me when I raise the chair a lot higher. Hands stopped going numb. Same for chair at computer. Good luck

seasaw2mch 06-17-2011 12:00 PM

ok I'm going to throw you all a bone sort of speak to see if any of you have ever hear about or investigated this. But first I want to let you know that I found this information just late night while doing my research on different causes of cancers &/or natural things I can do to help rid myself of breast cancer.

I found this information in a book written by Dr. Sherrill Sellman, ND called "Hormone Heresy". Chapter 14, Discovering Some of the Benefits of Natural Progesterone, section "Aches and Pains of the Muscles (Fibromyalgia)" states, Dr. Lee found that fibromyalgia, which is reaching epidemic proportions in the US, would disappear within 6 months to a year upon using progesterone supplements."

This statement caught my eye because my daughter has so much trouble with pains throughout her body which the doctors say is fibromyalgia. This book is a very interesting read and worth the time to read if for nothing more than a good place to start doing your own research on how progesterone deficiency can effect all types of problems form simple PMS to cancer and my other things in between.

For what it's worth, I would recommend this book to everyone that really wants to get to the root of things.

Have a great day!
Sue

topper1 06-17-2011 12:42 PM

i have fibro too and polymyagia rheumatica......sorry

topper1 06-17-2011 12:42 PM

i have fibro too and polymyagia rheumatica......sorry

Sallyflymi 06-17-2011 01:22 PM

Please get checked by a good Dr. Not all is fibromyaligia. Take good care of yourself.

desertrose 06-17-2011 01:26 PM

First I assume you are seeing a pain or neuro specialist and you are taking medications for your diagnosis. If not I strongly suggest you seek the help of one. The changes you've made in your sewing routine are helpful for your condition but will not treat your entire problem. I hope you'll be feeling better soon. :D

glowworm 06-17-2011 02:01 PM


Originally Posted by jaciqltznok
if you are going numb..you need to have your spine checked...
numbness is not just associated with fibro and believing that everything you have gone wrong is related to fibro could be causing you more damage! get the dr to xray for arthritis and check your sugars..both can cause numbness...and so can a million other things...

ditto. In the past I went without medical help thinking it was just Fibro. See a dr.

serenitybygrace 06-17-2011 03:43 PM

I am so sorry to hear about the pain you have as a result of fibromyalgia. I was told that fibromyalgia and chronic fatigue immune dysfunction syndrome are the same. It just depends on who does the diagnosis. There is a CFIDS Journal published by the Chronic Fatigue Immune Dysfunction Association. It helped me tremendously when I was going through it. It is certainly no fun to live in chronic pain. I went to a DO that practiced like an ND. He put me on Glucosamine Chondriton and Flax Seed Oil among other things. I went to a Chiropractor who used an accupressure treatment. The newest version of that treatment is called The Fiengold Method. I also took Hylauronic Acid as well as an antidepressant much like Cymbalta that they advertise on TV. Use anything you can to get better.

carolynjo 06-17-2011 03:58 PM

So sorry about you pain. I saw in Connecting Threads or Nancy's Notions recent catalog a velcro strip that you can put around your hands (across the fingers, leaving the thumb free) that allows you to just lay your hands on the fabric and the velcro hooks will hold the fabric and guide it through the machine. That might work for you and take the weight off your fingers. Hope so.


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