Fibromyalgia Awareness Day
05-12-2011, 05:17 AM
#31
Junior Member
Join Date: Aug 2010
Location: Auburn, Wa
Posts: 177
I had a dr who I had seen for years tell me that I really needed phsyiatric help. He wasn't my family dr after that. I went on to others and have been on SS Disability for 8 years now. I guess it wasn't in my head! I would paint my toes but theres' no way my body will bend like that. I will wear purple though. My favorite color.
05-12-2011, 06:04 AM
#36
Super Member
Join Date: Dec 2010
Location: Atlanta, Ga
Posts: 1,516
WE all know it's for "real" altho it's been an uphill fight for sure. Whenever I write the congressfolks, I point out that when I had to go on SSDI finally, I was making a good salary and contributing to the economy and now I am "draining" it. I figure if I can raise their awareness on a financial level that maybe the light will go off in their heads!
As they say "what do they call the doctor who graduates last in his class...DOCTOR!". The rheumatologists at least know we are for real, it's their subspeciality. Tho they seem to be reluctant to prescribe adequate pain meds, which means I gotta see both my paindoc and the rheumie, but I just see her once a yr to touch base.
As they say "what do they call the doctor who graduates last in his class...DOCTOR!". The rheumatologists at least know we are for real, it's their subspeciality. Tho they seem to be reluctant to prescribe adequate pain meds, which means I gotta see both my paindoc and the rheumie, but I just see her once a yr to touch base.
05-12-2011, 06:13 AM
#38
Super Member
Join Date: May 2010
Posts: 1,183
Oops! Will have to wash a load of reds so I will have something clean and purple to wear!
I was diagnosed 12 years ago but have had it much longer. I take a handful of pills every day. Been on Lyrica for a few months now and it seems to have lessened the pain. It certainly isn't gone but much better. I have learned that I need to avoid sugar. It seems to make the pain worse. Of course do I avoid sugar? Not. And I'm diabetic. Struggling with this.
I don't know how I would make it without my occasional Lortab. The drs are so stingy with it. Won't give me but 15 a month and no refills so I have to spend $25 every month just to go get my refill. Irritates me.
Anyway....so glad you brought awareness to this day! I didn't know it existed.
I was diagnosed 12 years ago but have had it much longer. I take a handful of pills every day. Been on Lyrica for a few months now and it seems to have lessened the pain. It certainly isn't gone but much better. I have learned that I need to avoid sugar. It seems to make the pain worse. Of course do I avoid sugar? Not. And I'm diabetic. Struggling with this.
I don't know how I would make it without my occasional Lortab. The drs are so stingy with it. Won't give me but 15 a month and no refills so I have to spend $25 every month just to go get my refill. Irritates me.
Anyway....so glad you brought awareness to this day! I didn't know it existed.
05-12-2011, 06:46 AM
#39
Junior Member
Thread Starter
Join Date: Mar 2010
Location: Lansing, MI
Posts: 163
Originally Posted by nmthelen52
Hey girl friend, thanks for letting us know and I will certainly wear purple today! I need to do everything I can to keep my favorite long arm quilter happy and healthy!!!
05-12-2011, 06:47 AM
#40
Junior Member
Thread Starter
Join Date: Mar 2010
Location: Lansing, MI
Posts: 163
For all of you struggling with this, here is one of my favorite quotes: "I have fibromyalgia, fibromyalgia doesn't have me".
This photo sums up the pain down my spine most days
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