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Thread: does anyone elese have fibromyalgia

  1. #1
    Senior Member minnow895's Avatar
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    i have just recently been diagnosed with it and am trying to learn about it .
    if you have fibromyalgia pleas give me ideas of how to deal with it any suggestions are greatly apreciated


    god bless each and everone of you

  2. #2
    Super Member amandasgramma's Avatar
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    Yes, I was diagnosed with fibro/chronic fatigue over 15 yrs ago. I maintain and keep them under control by watching the food additives. Look up www.truthinlabeling.com and read what they say. I found my symptoms are bad when I ingest MSG and Aspertame too much. A little for me is okay, too much and I'm sick. It may be other additives are bothering you....do an anaysis of EVERYTHING you eat...who knows, you may end up being well again -- I am!!

  3. #3
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    My step mom found relief by eliminating gluten from her diet. When she does eat gluten now, she knows that she will be hurting that night or the next day.
    Carol B

  4. #4
    Super Member damaquilts's Avatar
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    Fibro and CFS here too. For the last 10 years. Doesn't seem to matter what I eat or don't eat Except MSG has always bothered me and Aspartame I don't use. Don't like the after taste of artificial sweeteners. The bad part about these diseases is they hit everyone differently. I find changes in weather good or bad can just send me to bed in pain. The fatigue is the worst though most times. I hate feeling tired all the time.
    I get a newsletter , hope its ok if I put the link here .
    It keeps up on the research being done.
    prohealth.com/em/EM081110B

  5. #5
    Senior Member minnow895's Avatar
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    thank you for the link it may help to be more informed

    Quote Originally Posted by damaquilts
    Fibro and CFS here too. For the last 10 years. Doesn't seem to matter what I eat or don't eat Except MSG has always bothered me and Aspartame I don't use. Don't like the after taste of artificial sweeteners. The bad part about these diseases is they hit everyone differently. I find changes in weather good or bad can just send me to bed in pain. The fatigue is the worst though most times. I hate feeling tired all the time.
    I get a newsletter , hope its ok if I put the link here .
    It keeps up on the research being done.
    prohealth.com/em/EM081110B

  6. #6
    Power Poster nativetexan's Avatar
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    I do but am not doing much for it. looking for work again but not heavy lifting and standing for hours making copies of huge code books like i did before, i doubt i could do that again.

  7. #7
    Super Member jetnica's Avatar
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    I was diagnosed in '96. My big trigger is stress. If I'm not careful and get too wrapped up in work, my body will shut down and I won't be able to move.

    For me, there's a series of things I can watch for to know when it's time to walk away for a while. First my headaches are massive - no relief possible. Then my back starts seizing up and shouts at me to stop. If I ignore those two things, my digestive system will start yelling, and it's the last thing to shout before a day (or three) of nothing but rest will fix me.

    I don't have a certain food, but cold weather is murderous to me. It's a battle in the winter, my boyfriend likes the apt nice and cool year round - one of the reasons I think I started quilting is so that I could have more blankies to cuddle up with when it's cold.

    I've been going to the chiropractor and I am exercising again, I felt the best when I was "in shape" when I was in college. It's tough to exercise on bad days, but usually what happens is a good nap after the gym and I'm good to go. (Come to think of it, that can't be healthy)


    I guess the biggest thing with Fibro is to learn to listen to your body first. It will tell you what it needs and when enough is enough. Be careful with the research, especially some of the poo that is on the internet - people will say CRAZY things and have CRAZY fixes for Fibro. The links already listed are good ones.

  8. #8
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    Quote Originally Posted by amandasgramma
    Yes, I was diagnosed with fibro/chronic fatigue over 15 yrs ago. I maintain and keep them under control by watching the food additives. Look up www.truthinlabeling.com and read what they say. I found my symptoms are bad when I ingest MSG and Aspertame too much. A little for me is okay, too much and I'm sick. It may be other additives are bothering you....do an anaysis of EVERYTHING you eat...who knows, you may end up being well again -- I am!!


    Aspartame will put me in bed for 3 days - literally! Anything marked "Diet" or 'artificially sweetened' is off limits, as is Pepsi - it's loaded with it. Coke in *very* small amounts is OK.

    KFC is also off limits because of the MSG. The 'secret' herbs and spices mixture is 49% MSG - 1% below the Australian legal limit. Red Rooster is OK

    Preservatives also play hell with my fibro. I must be the best label reader in the local supermarket.

  9. #9
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    i started a personal diary here on FMS. i have it,been diag since 1982,when it was called fibrositis. they was only one paragraph on it at the library back then. now there are all sorts of books and info out there.
    there is a magazine called FM Aware, out of canada i believe.
    there are message boards just for it too. but i got tired of the bit*ch sessions, i am more interested in learning to live with it.
    i have given up so much, sold my motorcycle,gave up my womens pool league i had for over 10 years.
    the biggest thing is learning to delegate things,letting housework go..the dust won't kill you.
    i have a beautiful garden, and i have used big rocks to sort of mark off sections, so i don't weed or putz past that section. if i do, i pay for it,in bed or hurting or end up in a flair.
    i have had to learn to relax. i WAS a type A personality. and let me tell you, it will hurt you to no end,if you don't change.
    people just don't understand, because you don;t LOOk sick.
    google "the spoon theory"..thats it is a nut shell. i may have the link apart of my signature, i can't remember..lol
    memory is a big issue. i have learned to write everything down, i rely on my calendar and i have a dry erase board in the kitchen, i use all the time. i set my alarm on my cell phone to help remember things also.
    water exercise is the best for FMS, you don't feel like exercising, but it is important to MOVE your body..even when you feel you can't.
    i wish you well and Blessings. we are all here,to support you. if there is anyway we can help you..just ask. Kim

  10. #10
    Super Member damaquilts's Avatar
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    Kim you have just described my life. I ration my energy. I took yesterday completely off. NO sewing , cleaning, other than dishes. spent most of the day on this board. (evil thing) lol
    I also have CFS which makes it worse because while exercise helps fibromyalgia it makes CFS worse.
    And I am with you everyone says but you look fine. I just want to answer And you look smart but I never have.
    I know when I have pushed myself too far. I lose my voice, my lymph glands in my neck swell and I get a sore throat. Then I know I am out for the count for about a week.
    Also the meds they advertise like Lyrica . The side effects were awful. As was the cymbalta.
    You need to just learn what your limits are. Don't push yourself past them.

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