I go To The Sea To Breathe

[quote=penny doty]My
dd dr. told her that crohns disease is also connected with fibro. i have had fibro. for many years, i use to think i kept getting the achy flu, but finally was told i had lupus, than fibro, even tho i test postive for lupus. my legs and hips are really painful, and i have started noticing that when i shake hands that sometimes it really hurts. good luck.

skpkatydid

I have been diagnosed with fibromyalgia for 7 years.But I think I have probably had it for a very long time. My pain is transitory, but is mostly in my legs. The fibro is aggravated with the "pink" artifical sweetener, causing all the connective tissue in my neck and arms to hurt and ache. So of course I don't use it. (grin) I take a anti-inflammatory and muscle relaxant at night. Cold weather is starting to really bother me especially since I have Raynauld's Phenomena (circulation shuts off to fingertips ...you can actually cut yourself and not know it until the circulation returns) and it is extremely irritating and uncomfortable. It can last a few minutes or longer. They hurt when they get the blood flow back, also.

Tink's Mom

Yes, I have Fibromyalgia...NOT fun...I had a big flare up, few weeks back that hit so bad and quickly that I ended up in the hospital....Then I was given something that caused an allergic reaction....It's been a really fun month....
Be careful with Lyrica...some of the side effects outweigh the benefits. I felt great on it for a while, but had to get off of it. Stress is a trigger...I've had this for about 10 years.

Lacelady

I have it too, but fortunately, don't seem to get too many flare ups. I do have leg pain though, especially at night, which added to arthritic knees and hips can be a nuisance. I take pain meds, anti inflammatories, and relaxants, so I think they are probably keeping me going.

Honey

It's been about 15 years since mine was diagnosed. For me the pain was mostly in the big bones of my arms and legs. It felt like someone was ramming a red hot poker through the middle of them. About 4 years ago I went to a Dr. of alternative medicine. He is a real MD, just doesn't stay inside the box and definitely does not believe in a pill for everything. He did a lot of saliva tests and found out that my body was totally messed up. The only thing that is relevant, however, is that he started giving me vitamins that were put together just for me. I also got an IV once a week for six weeks that was a combo of mega doses of c and d along with some other vitamins and minerals. The bottom line is, I have not had an episode of fibro since. Once in a great while I will get a little achy, but that is about it. A nice warm bath or shower and a couple of Tylenol and I'm good to go with no pain. I'm not saying this would work for everyone, but it sure did for me.

blahel

[quote=I come to the sea to breathe]i too get very achy all over at times i take panadeine forte at night to sleep. My legs and feet are the worst but it isnt as painful as some of you seem to have it. It is just achy. I have mentioned it to the doctor but he didnt seem concerned. Does it hurt more when you walk or is it just achy?

sewbaby

I found out about having fibro from having an attack, I was tested years ago for RA, it runs in the family lucky me. Told that I tested positive and found out recently that it was Lupus not RA , not that it makes much diffeence, in my case. Motor vehicle wreck 15 years ago where I broke every thing in my upper body except by back,vehicle landed on my chest. So all in all fibro, RA, lupus, COPD(collapsed lungs in mva), as you all know some days are good some days are not. But I several interests in the sewing field so if I can't do one I almost always am able to do another. For me sewing is very relaxing and that is KEY to pain control!! relax if you can and enjoy life to your full potential even on those bad days.

SherriB

I don't have fibro but I do have lupus. I was diagnosed several years ago. I mostly have joint pain and sensitivity to the sun. My hands seem to hurt the most, especially the thumb joint closet to my hand. There are days when I wish I could just "pop" off the painful part and put it back when it finally quits hurting. I dread the day when it gets to bad to sew.

fabric-holic

OMG! You described exactly my symptoms! I went to a rhuematologist in Jan. and he drew tons of blood but it all came back normal, according to his nurse. I wasn't hurting that day so maybe it affected the blood results. I almost couldn't function last summer (too much sun?) but over the winter I've only hurt maybe 2 or 3 days each week. My toes hurt too...I thought I'd broken several of them.
Right now my wrists and thumbs are so sore I can't pull the covers up at night, hold a heavy glass, etc.
I'm almost sure I have Lupus, although he didn't seem convinced.
After reading the posts I think I have Raynauds too. My fingers go white in the cold and hurt like crazy even when they're warming up.
Are all these different syndromes related?
I mean are they all auto immune? (Fibro, Lupus, Raynauds, Sjongrens, etc)

enelra

i was not registered until i read your question and all the answers you received. i have a sister with fibromylagia who was taking all kinds of pain killers until i told her the best pain killer. i take omega 3.6.9 flaxseed,fish, borage oil, 1200mg.the brand that i use is webber. i take 4 every day, 2 in the morning, 2 in the afternoon. the only problem that i know about is that they are a form of blood thinner, so if you already take a blood thinner, or already have a problem, don`t take.... but ask your pharemist.that`s who i talked to.i take no other drugs,and i feel great. so i told my sister about it, and she decided to try them, it took her almost 3 weeks before she realized this is the only pill she takes, and she is pain free. she tried taking just 2 for 2 days and the first pain she had was in her hips, now of course she takes 4 capsuls every day. good luck, it beats taking prescription drugs. they also give you lots of energy. heres wishing you all the best arlene