Quilt Retreats and Fibromyalgia
#21
Originally Posted by vickig626
Originally Posted by grayma
I have fibro that is mostly controlled with magnesium. But the flare ups are very uncomfortable. I went to a retreat last year and I just got up from my chair (I took my own) and went to iron, see what everyone else was working, chit chat, or just took a walk. Also went to my room earlier than most in the evening. It was fun and I didn't suffer too much. However, my commute was only about 10 minutes!
And, yes, that's what I'm thinking if I do decide to go. Just putter along as I feel up to it.
#22
Super Member
Thread Starter
Join Date: Mar 2007
Location: Lansing, MI
Posts: 1,038
Originally Posted by grayma
Originally Posted by vickig626
Originally Posted by grayma
I have fibro that is mostly controlled with magnesium. But the flare ups are very uncomfortable. I went to a retreat last year and I just got up from my chair (I took my own) and went to iron, see what everyone else was working, chit chat, or just took a walk. Also went to my room earlier than most in the evening. It was fun and I didn't suffer too much. However, my commute was only about 10 minutes!
And, yes, that's what I'm thinking if I do decide to go. Just putter along as I feel up to it.
Thanks for the info !!
#26
Super Member
Join Date: Oct 2009
Posts: 5,453
i have FMS also..just deal with it as you do at home. make sure you have warm clothes,maybe you use a moist heating pad,take it with you. the hardest part of fibro with me, is the mornings...take a hot bath, move around,walk the halls to get moving. take lots of breaks! have fun...
Originally Posted by vickig626
Just wondering if anyone who has Fibro has gone on a quilt retreat. Specifically, how did you handle your pain while trying to sew, etc. for 2+ days. Were you actually able to enjoy the weekend?
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
Thanks for any input.
I know this might sound like a strange question but I'm thinking about going to the MI Lake Huron Retreat but not sure if I can handle those "camp" beds, sewing, quilting, etc. for 2-1/2 days plus the drive there and back.
Fibro sucks !! :thumbdown:
Thanks for any input.
#27
Originally Posted by Airwick156
Originally Posted by Kehoeta
I'm planning on going to the Lake Huron retreat also. If it would help, I can drive.. I have a Tahoe, so it is comfortable for longer trips and for most passengers.
PM me if you are interested.
PM me if you are interested.
#28
Member
Join Date: Mar 2011
Posts: 12
I've had fibro most of my life and decided it will not dictate. I want to live my life, so the first day back from retreat is a wash. Take with you whatever makes you comfortable at home. Pillows, heating pad, electric blanket, pain pills. Pace yourself. Every 45 minutes get up and walk around. Take a short nap, a nap longer than 20-45 minutes is counter-productive.
the retreats I have attend had a massage therapist come in for aa afternoon, it's worth every penny. This has worked for me for years. good luck.
the retreats I have attend had a massage therapist come in for aa afternoon, it's worth every penny. This has worked for me for years. good luck.
#30
Originally Posted by vickig626
I want to thank everyone who has responded to my query. I knew I wasn't alone with dealing with Fibro and trying to quilt. Couple that with arthritis definitely affects how and what I do.
Thank you ALL !!!
Thank you ALL !!!
Thread
Thread Starter
Forum
Replies
Last Post
tdgiffin
General Chit-Chat (non-quilting talk)
40
06-21-2011 06:10 AM
Joanie2
Main
5
03-12-2011 08:40 PM