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Thread: Anyone here with sleep apnea?

  1. #1
    Senior Member Radiana's Avatar
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    I'm just wondering if there are some of you here on the board with sleep apnea? I've had it for several years and got a machine three years ago but just couldn't get used to it so I never really used it.

    Finally the doctor pushed me to use it because my health is so bad. I got a new mask for it and now I'm sleeping soundly all night. I'm sleeping a little too much and the dreams I'm having are pretty vivid but I'm feeling so much better physically.

    Anyone else on this machine? Have you had good results? By the way, if you are on the machine you may qualify for a discount on your utility bill.

  2. #2
    Junior Member AZTeri's Avatar
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    I was diagnosed with it about 4 years ago and have been using my machine since then. It took trial and error to find the right mask, and I'm still not really that happy with the one I have. I didn't use it in Paris - forgot a part to it - and did ok. Of course, that's probably because I slept with Ambien's help the entire time there.

    I'm still not sleeping soundly, but I attribute that to "personal vacations in the tropics" that love to hit all the time at night. :/

  3. #3
    Super Member greenini's Avatar
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    Yeah, aren't they just the sexiest sleep accessory??? I've used mine off and on for years. I had a lot of trouble adjusting to it, in fact at first I quit using it because it just woke DH Up too so we were both sleep deprived :wink:

    I finally talked to sleep doc and I am now on my 2nd machine, I got a battery operated one that will run for 3 days when we camp with no power.

    i now will at least start every night out with it on, and if I wake up in the middle of the night and it's annoying, I allow myself to take it off. If I can put it back on and go back to sleep, I do. My doc pointed out that some hours are better then none and so I do try to use it all the time. I don't feel like getting up on tabletops and dancing, if it made that much difference, i would most likely wear it all day too :lol:

    Periodically, I try nasal pillows or a new mask, but I pretty much like the Respironics comfort gel one and stick with that.

    I am also familiar with the personal bed shower routine...I take anti=estrogens and have for almost 5 yrs...my oncologist and I have an agreement, I'll try to tough it out till Sept which will be 5 yrs, if the summer is too miserable I can quit early...I can live with that. I put on sox, take them off, pull up covers, pull them down, put on T-shirts, take them off...ain't it fun :lol: :lol:

    I had to quit taking Ambien after I tried to bulldoze DH who didn't want me to raid the fridge while I was asleep, imagine that! At least I didn't gain 100 lbs like that one woman or eat frozen leg of lamb...
    My sleeping pills consist of 10 mg of melatonin, soma and Benedryl. It all kinda works....

  4. #4
    Super Member bjeriann's Avatar
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    I've had one for about a year and use Ambien every night. I sleep great. It was a trail and error with the mask. The first one was a zest mask and I had alot of eye problems with it. I now use a swift FX for her, it works wonderful.
    I can't sleep without it or if I sleep, I wake up with a sore throat and headache.

  5. #5
    Super Member great aunt jacqui's Avatar
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    DH has had one for 8 years now. He did have trouble and tried a lot of masks before he found one that he likes.(just nasal pillows on the apparatus.) He sleeps better and has eliminated his panic attacks when he couldnt get his breath. So we say....yay for the mask. no more snoring either, yay
    keep with it, it will make you feel better in the long run.

  6. #6
    Super Member great aunt jacqui's Avatar
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    sorry

  7. #7
    Power Poster Sadiemae's Avatar
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    I have Critical Sleep Apnea, which is the most severe of all of the levels. I sleep using my machine every night. I also use it if I nap. It is just too dangerous not to use it(My 02 levels can go down into the high 50's), and I don't like the severe migranes I get if I don't use it. After 30 minutes I enter REM sleep and stay there all night, which is also not normal. I need a new mask, but even just my portion is over 60 dollars.

    Can you explain how you can qualify for a discount on the utility bill?

  8. #8
    Super Member Grama Lehr's Avatar
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    Quote Originally Posted by Sadiemae
    I have Critical Sleep Apnea, which is the most severe of all of the levels. I sleep using my machine every night. I also use it if I nap. It is just too dangerous not to use it(My 02 levels can go down into the high 50's), and I don't like the severe migranes I get if I don't use it. After 30 minutes I enter REM sleep and stay there all night, which is also not normal. I need a new mask, but even just my portion is over 60 dollars.

    Can you explain how you can qualify for a discount on the utility bill?
    The Electric company will give you a form that the doctor signs that you need it to live. Mail it back, you get a life line discount, same with Asthma.

  9. #9
    Junior Member glassnquilts's Avatar
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    I had sleep apnea too but the doctor said that the fact that I only stopped breathing 9 times an hour wasn't enough to use a machine. He recommended surgery. I had rhinoplasty and turbinectomy. I don't stop breathing but I still snore and loud.

  10. #10
    Super Member QuiltnCowgirl's Avatar
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    Well I get to go have a consult on June 8th with a sleep apnea doctor and then probably a sleep study. When I gained weight I started snoring. Last summer had an upper respiratory infection morph into bronchial irritation & asthma. Recently my husband has noticed that the snoring is worse & I am not breathing quite a bit during the night (his description). If I sleep on my side I may snore, but don't stop breathing, so for the past few weeks, and until my appointment, I am sleeping on the futon couch so I can keep on my side. I'll be watching this thread to see what others say. Sounds like maybe I can pick up some facts & tips that will help me get adjusted to a machine/mask sooner.

  11. #11
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    My husband just got one a couple months ago and I LOVE it! He doesn't snore anymore. He didn't have trouble sleeping before, he's always out like a light. Between my "personal tropical vacations" and his snoring, I wasn't getting much sleep. He does find he has more energy later in the evening though.

  12. #12
    Power Poster Sadiemae's Avatar
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    Quote Originally Posted by Grama Lehr
    Quote Originally Posted by Sadiemae
    I have Critical Sleep Apnea, which is the most severe of all of the levels. I sleep using my machine every night. I also use it if I nap. It is just too dangerous not to use it(My 02 levels can go down into the high 50's), and I don't like the severe migranes I get if I don't use it. After 30 minutes I enter REM sleep and stay there all night, which is also not normal. I need a new mask, but even just my portion is over 60 dollars.

    Can you explain how you can qualify for a discount on the utility bill?
    The Electric company will give you a form that the doctor signs that you need it to live. Mail it back, you get a life line discount, same with Asthma.
    There isn't a program like this at my Power company. Bummer....

  13. #13
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    My CPAP machine and the nose pillow pads have not only saved my life, but have enabled me to live!! I use it at night and whenever I nap. The machine is so quiet that I don't hear it running.... Hubby is amazed. Frienda are amazed that the machine is so quiet. It is easy to take along when traveling --- even on airlines :)

    I hadn't slept in years. The first study indicated I had an average 117 episodes an hour. The 117 is not a typo.

    I told my doctor he had changed my life! No more headaches, pushing myself to stay awake, and muddled thinking. I can think clearly and enjoy life, whereas I had only been existing.

    Whatever you do, keep searching for the right equipment to save your health and give you a new lease of life!!!!!!!!

  14. #14
    Senior Member Grinster's Avatar
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    What kind of C-PAP do you have. My husband's is noisy and keeps me awake. I am a former Recovery Room Nurse and couldn't sleep for counting his apnea episodes and waiting to start CPR. Now the machine noise keeps me awake. Good to have an extra bedroom.

  15. #15
    Super Member chickadeee55's Avatar
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    Part of job is managing our sleep apnea program, we have had it in place for about 1 1/2 yrs. And it is amazing how people with SA have their life improved because of treatment. What is bad, that most people do not know they have it, and it is doing damage to your body.

    It was nice reading this thread, even though having the machine is a big adjustment in you life, it can be a life saver in the end. And yes I agree, if you are having problems get the settings and the machine checked out. This is a case where no question is a dumb one, because most time there is a simple solution.

  16. #16
    Junior Member cindyjean's Avatar
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    I have mild sleep apnea, but have had some major life issues from it... First machine I got, I used it for 5 days and sent it back. refused to use it. Then about a year later I was having more problems. I was so tired all the time, I had trouble functioning. Went to a different medical company. He gave me a newer model machine that was very quiet and he adjusted it so it would not be full force until 45 min. after I started using it. Which meant I could fall asleep before the full pressure.. I also used the nasal pillows. I seemed more apt to keep it on.. But as the months went by I was still extremely tired. The tiredness began affecting my job.. I was getting very fuzzy brained.. couldn't remember many things.. Made lots of mistakes.. My work was very patient and worked w/me.. I kept going back to the sleep Dr. and was told my sleep apnea was not bad enough to affect me like this.. I was at my wits end! I kept having blood work to see if there was something else wrong.. Finally I decided to change my mask. What a difference.. At first it was leaving big red dry marks on my face from the new mask. but i was determined to keep trying it.. I needed my mind back and I needed to not want to fall asleep while driving.. So I forced myself.. After a couple of weeks. I really noticed a difference. I got my memory back and my energy.. I have been trying to lose weight for 2 yrs and was not able to.. Now I am losing weight! But now I am having another issue.. Some nights I am having a terrible time sleeping. This is new to me since I first started the machine I could sleep, just wasn't the good sleep.. I tried taking sleeping pills, but made me so groggy all day, it affected my work.. Even tried a 1/2 sleeping pill. I don't dare go to the sleep Dr. and ask for help.. She doesn't help me at all. I think she is a terrible Dr. Since she could not suggest I try to change the mask and allow me to go through months of torment w/ the tiredness and memory loss.. There are no other sleep Dr's in my area. she came from 2 hrs away.. And suggestions would be welcome... : )

  17. #17
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    I started using a CPAP machine about 6 months ago. Started with the nose pillow but that did not work. So now have the gel mask. I take a generic Tylenol PM about 30-45 min before I go to bed and my machine is set so it is not full pressure for 30 min. Some nights I have nasal congestion & don't use it. I have so much more energy but am still adjusting to the machine. Interesting to read about other board members experiences.

  18. #18
    Super Member great aunt jacqui's Avatar
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    cindy jean. call your insurance Co. and ask for others who specilize n sleep apnea. We travel about 45 mins, but before we moved to the boonies there were tons. Even whole buildings. Now that DH is all set we really only have to deal with calling for replacement pillows.
    and for others :DH has a beard and mustache and it was really hard to get a good fit.

  19. #19
    SEW
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    I am so glad to see this thread! I was 1st diagnosed with sleep apnea 6 yrs ago. I started on the CPAP at that time. When it works well, I sleep and feel fantastic. The problem is some of the side effects. Sometimes, my stomach gets bloated and distended and it is so uncomfortable! Spoke to my Dr. about it and said we maybe need to tweak the settings. So I just had another sleep study this past Sunday. I am excited to hear about the new quieter machines...

  20. #20
    Senior Member Radiana's Avatar
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    Quote Originally Posted by Sadiemae
    I have Critical Sleep Apnea, which is the most severe of all of the levels. I sleep using my machine every night. I also use it if I nap. It is just too dangerous not to use it(My 02 levels can go down into the high 50's), and I don't like the severe migranes I get if I don't use it. After 30 minutes I enter REM sleep and stay there all night, which is also not normal. I need a new mask, but even just my portion is over 60 dollars.

    Can you explain how you can qualify for a discount on the utility bill?
    I live in California and my utility company is Pacific Gas and Electric. A friend told me about how I was entitled to have a discount because of the machine. I gave them a call and they sent me a simple form to fill out and I had my doctor sign it. It saves us about $50.00 a month. It was interesting that my HMO never told me about putting in for a discount once I got the machine. It seems to be a bit of a secret. The best part is that the discount is not based on income it's only based on using the cpac machine. I'm sure each utility company is different but it's worth giving them a call.

  21. #21
    Power Poster Sadiemae's Avatar
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    Quote Originally Posted by Radiana
    Quote Originally Posted by Sadiemae
    I have Critical Sleep Apnea, which is the most severe of all of the levels. I sleep using my machine every night. I also use it if I nap. It is just too dangerous not to use it(My 02 levels can go down into the high 50's), and I don't like the severe migranes I get if I don't use it. After 30 minutes I enter REM sleep and stay there all night, which is also not normal. I need a new mask, but even just my portion is over 60 dollars.

    Can you explain how you can qualify for a discount on the utility bill?
    I live in California and my utility company is Pacific Gas and Electric. A friend told me about how I was entitled to have a discount because of the machine. I gave them a call and they sent me a simple form to fill out and I had my doctor sign it. It saves us about $50.00 a month. It was interesting that my HMO never told me about putting in for a discount once I got the machine. It seems to be a bit of a secret. The best part is that the discount is not based on income it's only based on using the cpac machine. I'm sure each utility company is different but it's worth giving them a call.
    I called and Idaho Power told me there is no discount here. I was hoping.

  22. #22
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    Quote Originally Posted by Grinster
    What kind of C-PAP do you have. My husband's is noisy and keeps me awake. I am a former Recovery Room Nurse and couldn't sleep for counting his apnea episodes and waiting to start CPR. Now the machine noise keeps me awake. Good to have an extra bedroom.
    I put a piece of 2 inch foam under my husbands machine and it is very quiet now

  23. #23
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    Quote Originally Posted by Grinster
    What kind of C-PAP do you have. My husband's is noisy and keeps me awake. I am a former Recovery Room Nurse and couldn't sleep for counting his apnea episodes and waiting to start CPR. Now the machine noise keeps me awake. Good to have an extra bedroom.
    I put a piece of 2 inch foam under my husbands machine and it is very quiet now

  24. #24
    Super Member mamaw's Avatar
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    My husband and son both are on one and feel so much better with them. Also have a sister-in-law with one and has had positive results with her's also.

  25. #25
    Member jfifer's Avatar
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    I have sleep apnea, I love my machine. On my days off. I am in bed watching tv using my machine. I just breath better. I have talked to my doctor. He said it was fine.

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