Ever Wonder About Your CRS syndrome, Quiltheimers...ADHD?
06-13-2009, 02:29 PM
#21
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Originally Posted by Rhonda
QC I want you to know that people like you help people like me and my daughter learn how to cope with ADHD. I and my DD Sara ran our own daycare and we had 3 ADHD kids. Through daycare I took classes on ADHD and saw my husband and my one son in the sympton list. \
Sara now has three kids two have ADHD and we had some background in this so it may have helped but it is still hard on all of us to deal with at times. One DGS(8)Zach is autistic and ADHD one DGS (10)Joey has OCD and ADHD and TICS and may have ausbergers(not diagnosed). Joey(10) has had a lot of the issues you talk about. He has a hard time dealing with people. He is inappropriate behavior some times and has a hard time understanding people's personal space as well. He talks alot about his dreams which are usually strange and he is a deep thinker and spends alot of time in book learning. He reads the encyclopedias. He is beginning to be able to make friends some but his friends make fun of him.
I use to think meds were wrong but now we can not cope with either boy without meds. They take the edge off and allow them to be able to cope in the real world. Zach off meds is a nightmare!! He never stops and does dangerous things and is so miserable and he never sleeps without meds because autistic people's body does not make enough melatonin to tell the body to sleep.
We hear all the time from people that if you would only discipline that child more he would behave in public! And I hear well lmy child would never behave lilke that I can tell you that!!!
I don't like constantly explaining he is autistic because a lot of the behavior is really ADHD but I find myself defending him all the time to people when it really isn't any of their business unless he gets in their faces.
It isn't easy to be differant in this world. A lot of people assume he is retarded which is so far from the truth!! We spend a lot of time trying to out think him!! He is very high IQ and is a natural problem solver. If he wants to do something he can figure out how to get what he wants before you even know he is doing the forbidden activity!!
I applaud you for learning to cope so well in a world that is less than supportive!! You will always have all the support we can give here on the board!
My youngest son also struggled through school and I believe he has ADD and possibly ausbergers but he doesn't want to talk about it. He is what I always called my black and white kid. There are no grays in his world. Things are either right or wrong! And he will tell you about it!! He is 31 now married with twin sons and doing great so I am happy that he has learned to cope. He has dyxlexia also tho he denies it.
He tends to ignore what he doesn't want to deal with. So it doesn't exist!
Keep up the good work and enjoy your life to the fullest QC!!! I fully understand the struggle you go through!!
I also have really enjoyed your company on the board!!
Sara now has three kids two have ADHD and we had some background in this so it may have helped but it is still hard on all of us to deal with at times. One DGS(8)Zach is autistic and ADHD one DGS (10)Joey has OCD and ADHD and TICS and may have ausbergers(not diagnosed). Joey(10) has had a lot of the issues you talk about. He has a hard time dealing with people. He is inappropriate behavior some times and has a hard time understanding people's personal space as well. He talks alot about his dreams which are usually strange and he is a deep thinker and spends alot of time in book learning. He reads the encyclopedias. He is beginning to be able to make friends some but his friends make fun of him.
I use to think meds were wrong but now we can not cope with either boy without meds. They take the edge off and allow them to be able to cope in the real world. Zach off meds is a nightmare!! He never stops and does dangerous things and is so miserable and he never sleeps without meds because autistic people's body does not make enough melatonin to tell the body to sleep.
We hear all the time from people that if you would only discipline that child more he would behave in public! And I hear well lmy child would never behave lilke that I can tell you that!!!
I don't like constantly explaining he is autistic because a lot of the behavior is really ADHD but I find myself defending him all the time to people when it really isn't any of their business unless he gets in their faces.
It isn't easy to be differant in this world. A lot of people assume he is retarded which is so far from the truth!! We spend a lot of time trying to out think him!! He is very high IQ and is a natural problem solver. If he wants to do something he can figure out how to get what he wants before you even know he is doing the forbidden activity!!
I applaud you for learning to cope so well in a world that is less than supportive!! You will always have all the support we can give here on the board!
My youngest son also struggled through school and I believe he has ADD and possibly ausbergers but he doesn't want to talk about it. He is what I always called my black and white kid. There are no grays in his world. Things are either right or wrong! And he will tell you about it!! He is 31 now married with twin sons and doing great so I am happy that he has learned to cope. He has dyxlexia also tho he denies it.
He tends to ignore what he doesn't want to deal with. So it doesn't exist!
Keep up the good work and enjoy your life to the fullest QC!!! I fully understand the struggle you go through!!
I also have really enjoyed your company on the board!!
I know there are a lot of ppl out there, with what I have, and like me, have looked and found many coping strategies. I found mine, bc I am also a christian. I am not going to apologize to anyone for saying that, nor am I going to preach about it. I know it is ok, to say that here, bc you are christian too.
I just don't want to feel like I have an albatross around my neck anymore. I also, don't want anyone else to feel that way, especially the children. I am speaking up, for the little girl in me, that never got to. :D
06-13-2009, 02:34 PM
#22
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Originally Posted by butterflywing
brave mouse, i wish there was a way to clap for you via computer.
(oh, QC is using B's whole name, must be sincere! :wink: )
I love you, and I would applaud you for being who you are, and who you are to me...right back! :thumbup:
06-13-2009, 02:41 PM
#23
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Join Date: Jan 2008
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Originally Posted by bearisgray
Ow, wow.
And I thought my problems were big. (They are still annoying, though)
And I thought my problems were big. (They are still annoying, though)
During the years he was imprisoned, he collected tiny scraps of paper, and re-wrote the whole thing. This is one of the things he said about
human suffering
(I will have to paraphrase due to memory being just a bit foggy):
In each individual, suffering fills them up, like gas fills a vessel. You can't compare one kind of suffering to another...it's all painful.
Thanks for your support by responding. Even if I never know, if one parent re-thinks this disorder, or one person goes for help, then I have managed to pay it forward. :D
06-13-2009, 02:46 PM
#24
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Join Date: Feb 2009
Location: Southeast Michigan
Posts: 825
I applaud all of you who say "I have this and I am great". You may never know how much you help those who come after you. You are doing so much to correct the misconceptions surrounding ADHD, LD, autism, etc. Thank you all.
06-13-2009, 02:55 PM
#26
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Join Date: May 2007
Location: Missouri
Posts: 324
I, too, am a self diagnosed ADDer......our two sons were both diagnosed as ADHD.
I feel and understand the pain that comes with the looks and judgments that others make when they think they understand what you/your child is experiencing. We too have had many occasions when others would comment on our sons' behaviors.....and they had NO clue what our family was experiencing. At one point, we had those who called our younger son the Devil Child. That son is now serving a mission for our church--he's been out almost one year and has one more year to go. I KNOW there is hope for children with ADHD to flourish and be wonderful--we have two fantastic sons! They are caring and loving AND having had difficulties with behavior growing up, they are sensitive to others who have any number of a variety of "differences". : )
No they are not perfect,they still each struggle with some nuances of it, but the thing is they are able to cope and function in this life. and in the end, that is the important thing--they are happy, loving, caring, and responsible adults.
{climbs down off her soapbox}
I feel and understand the pain that comes with the looks and judgments that others make when they think they understand what you/your child is experiencing. We too have had many occasions when others would comment on our sons' behaviors.....and they had NO clue what our family was experiencing. At one point, we had those who called our younger son the Devil Child. That son is now serving a mission for our church--he's been out almost one year and has one more year to go. I KNOW there is hope for children with ADHD to flourish and be wonderful--we have two fantastic sons! They are caring and loving AND having had difficulties with behavior growing up, they are sensitive to others who have any number of a variety of "differences". : )
No they are not perfect,they still each struggle with some nuances of it, but the thing is they are able to cope and function in this life. and in the end, that is the important thing--they are happy, loving, caring, and responsible adults.
{climbs down off her soapbox}
06-13-2009, 03:03 PM
#27
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Join Date: Nov 2008
Location: Seacoast New Hampshire
Posts: 1,181
QnC - I love your sense of humor, your style, your way with words, and your advice. You are a warm, wonderful person and Lord knows we need more of your kind in the world.
And besides, I probably wouldn't like you so much if you were perfect. :wink:
And besides, I probably wouldn't like you so much if you were perfect. :wink:
06-13-2009, 03:10 PM
#28
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Join Date: Mar 2009
Location: Colorado
Posts: 8,966
QC, I so appreciated your post. I really did. What I really applaud is the fact that you so freely say, "take me the way I am. Love me -- or not". And, Little Mouse, who wouldn't love you, huh?
I do not have ADHD (though, I've been on medication for clinical depression for probably 15 years now -- and that's also kind of a "take me or leave me" sort of deal), but used to work at a school for kids with learning difficulties -- many of them with ADD/ADHD. Some kids were on medication, and I never had a doubt in my mind that that was the reason they were able to function and succeed, because we were able to see the difference between "before" medication was prescribed and "after". I absolutely know that not all people need medication.
I guess I just wanted to say to you, and the others who have spoken about it, that it's great it is being discussed. Isn't this the greatest place to come to be absolutely "yourself"? What a wonderful board.
Rebecca
I do not have ADHD (though, I've been on medication for clinical depression for probably 15 years now -- and that's also kind of a "take me or leave me" sort of deal), but used to work at a school for kids with learning difficulties -- many of them with ADD/ADHD. Some kids were on medication, and I never had a doubt in my mind that that was the reason they were able to function and succeed, because we were able to see the difference between "before" medication was prescribed and "after". I absolutely know that not all people need medication.
I guess I just wanted to say to you, and the others who have spoken about it, that it's great it is being discussed. Isn't this the greatest place to come to be absolutely "yourself"? What a wonderful board.
Rebecca
06-13-2009, 03:30 PM
#29
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Join Date: Feb 2008
Posts: 6,689
Quiltncrazy, thanks for your post. I have a GS with ADD, though he is 14 now and starting to outgrow it, but does struggle with self-confidence and school. They used to let him stand by his desk, because he could not sit in his chair very long.
Appreciate your openness. One thing I learned early in life was to accept people for the way they are and I think I have always followed that.
Thanks again!
Appreciate your openness. One thing I learned early in life was to accept people for the way they are and I think I have always followed that.
Thanks again!
06-13-2009, 04:42 PM
#30
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Join Date: Jan 2009
Location: Kentucky
Posts: 331
Don't have ADD but do have anxiety/panic attacks and know all about feeling different. I felt that I was the only one that felt "different".
I look forward to reading your posts. They "pick up" my day! :lol: :wink:
I look forward to reading your posts. They "pick up" my day! :lol: :wink:
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