MONO!!!!!
#21
Super Member
Join Date: May 2010
Posts: 1,183
My mono brought on my fibromyalgia but they are definitely two animals. Yes, you test positive for Epstein Barr but the dr told me that by a certain age everyone tests positive. Most people don't end up with mono with it. You need to have the mono antibodies tests. They show what stage of mono you are in whether it is in incubation, active, or recuperation. they have to do two consecutive tests to see if your numbers are going up or down. Most drs only do the one test that tests for epstein barr which will always be positive if you have ever had mono before. But the mono can still flare into the active stage again.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
#22
Originally Posted by mzsooz
My mono brought on my fibromyalgia but they are definitely two animals. Yes, you test positive for Epstein Barr but the dr told me that by a certain age everyone tests positive. Most people don't end up with mono with it. You need to have the mono antibodies tests. They show what stage of mono you are in whether it is in incubation, active, or recuperation. they have to do two consecutive tests to see if your numbers are going up or down. Most drs only do the one test that tests for epstein barr which will always be positive if you have ever had mono before. But the mono can still flare into the active stage again.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
#23
Originally Posted by mzsooz
My mono brought on my fibromyalgia but they are definitely two animals. Yes, you test positive for Epstein Barr but the dr told me that by a certain age everyone tests positive. Most people don't end up with mono with it. You need to have the mono antibodies tests. They show what stage of mono you are in whether it is in incubation, active, or recuperation. they have to do two consecutive tests to see if your numbers are going up or down. Most drs only do the one test that tests for epstein barr which will always be positive if you have ever had mono before. But the mono can still flare into the active stage again.
would you mind sharing with me the difference in your symptoms.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
would you mind sharing with me the difference in your symptoms.
Yes, mono brings on my fibro flares but it also has its own distinct symptoms that aren't the fibro. I can always tell the difference.
My suggestion would be to get tested again for the mono in a few weeks and see what your numbers are.
Would you mind sharing with me the difference in your symptoms.
#24
Not sure if there's a "difference"....
major fatigue (not like when I went thru the CF/Fibro.
Nausea constantly (morning sickness 24/7)
heightened allergies (problems with sudden onset - eyes swelling shut)
brain fog (yeah, just like fibro)
burning/tingling in extremities -- think foot falling asleep only would be 2 toes maybe -- and excruitiating -- not just tingling - more like stabbing with a knife
cold/hot sweats (yeah, thought menopause was back)
confusion
decreased alertness
urinating problems
dry cough -- been coughing for 9 months ---- I know - thought it was cancer!
earaches
fevers
headaches -- every day
irritability --- attributed that to sleep problems
malaise - "something's wrong - but don't know what"
night sweats
ringing in ears -- mild to severe for me
sore joints and muscles
sore throat
tremors -- mild -- comes and goes
I went thru the list online for symptoms and checked off mine......very enlightening. I attributed a # of things to normal older age and arthritis. Some were scaring me.
major fatigue (not like when I went thru the CF/Fibro.
Nausea constantly (morning sickness 24/7)
heightened allergies (problems with sudden onset - eyes swelling shut)
brain fog (yeah, just like fibro)
burning/tingling in extremities -- think foot falling asleep only would be 2 toes maybe -- and excruitiating -- not just tingling - more like stabbing with a knife
cold/hot sweats (yeah, thought menopause was back)
confusion
decreased alertness
urinating problems
dry cough -- been coughing for 9 months ---- I know - thought it was cancer!
earaches
fevers
headaches -- every day
irritability --- attributed that to sleep problems
malaise - "something's wrong - but don't know what"
night sweats
ringing in ears -- mild to severe for me
sore joints and muscles
sore throat
tremors -- mild -- comes and goes
I went thru the list online for symptoms and checked off mine......very enlightening. I attributed a # of things to normal older age and arthritis. Some were scaring me.
#25
Super Member
Join Date: Sep 2010
Location: Myrtle Beach, SC
Posts: 8,139
Originally Posted by amandasgramma
Originally Posted by Lynnejean
Mono is caused by the Epstein barr virus. Once you have the virus it stays in your system for life.
I have fibromyalgia/lupus and test positive for epstein barr virus but as far as I know I never had mono.
Take extra good care of yourself as you don't want this to turn into fibromyalgia because believe me fibro is misery like I can't explain.
healing hugs
I have fibromyalgia/lupus and test positive for epstein barr virus but as far as I know I never had mono.
Take extra good care of yourself as you don't want this to turn into fibromyalgia because believe me fibro is misery like I can't explain.
healing hugs
It was over a year before I felt like I had any energy.
Feel better.
#27
Super Member
Join Date: May 2010
Posts: 1,183
Originally Posted by Lynnejean
Would you mind sharing with me the difference in your symptoms.
With fibro there are no swollen glands or sore throat. The fatigue is different. I feel very tired but am still able to function on some level. Not with the mono. My fibro pain is all over the place. It migrates from here to there or sometimes I just feel like I've been run over by a truck. My trigger points are tender and I have problems focusing.
Hope this answers your question!
#28
I had what the doctors think was mono in 8th grade (tested positive for it in 9th, so who knows). I got sick (was out of school for a full 2 weeks) and truly never was the same. It totally wiped out my immune system for a few years (things are a bit better now). Diagnosed with Fibro/CF and a whole host of other things by my senior year in HS. It's like whatever it was attacked my brain and took a part of me with it :( Rest up! It's a miserable feeling and there's no point in pushing it!
#29
I am adament that I believe MSG, Aspertame, high fructose corn syrup and a host of other additives in our foods are causing these problems. I things they screw with our immune systems and then all the "stuff" creeps in. When I go on a totally "clean" diet....no Pepsi (man, that's hard), meat that has no horemones (fresh caught fish, etc) and home grown veggies, I feel great. Problem is it's hard to stay on that kind of diet where we live. Veggies/fruit cost twice what they do on the other side of the state and are poor quality for the most part. We're putting in a greenhouse next summer...I'm sure that'll help.
#30
Originally Posted by amandasgramma
Not sure if there's a "difference"....
major fatigue (not like when I went thru the CF/Fibro.
Nausea constantly (morning sickness 24/7)
heightened allergies (problems with sudden onset - eyes swelling shut)
brain fog (yeah, just like fibro)
burning/tingling in extremities -- think foot falling asleep only would be 2 toes maybe -- and excruitiating -- not just tingling - more like stabbing with a knife
cold/hot sweats (yeah, thought menopause was back)
confusion
decreased alertness
urinating problems
dry cough -- been coughing for 9 months ---- I know - thought it was cancer!
earaches
fevers
headaches -- every day
irritability --- attributed that to sleep problems
malaise - "something's wrong - but don't know what"
night sweats
ringing in ears -- mild to severe for me
sore joints and muscles
sore throat
tremors -- mild -- comes and goes
I went thru the list online for symptoms and checked off mine......very enlightening. I attributed a # of things to normal older age and arthritis. Some were scaring me.
major fatigue (not like when I went thru the CF/Fibro.
Nausea constantly (morning sickness 24/7)
heightened allergies (problems with sudden onset - eyes swelling shut)
brain fog (yeah, just like fibro)
burning/tingling in extremities -- think foot falling asleep only would be 2 toes maybe -- and excruitiating -- not just tingling - more like stabbing with a knife
cold/hot sweats (yeah, thought menopause was back)
confusion
decreased alertness
urinating problems
dry cough -- been coughing for 9 months ---- I know - thought it was cancer!
earaches
fevers
headaches -- every day
irritability --- attributed that to sleep problems
malaise - "something's wrong - but don't know what"
night sweats
ringing in ears -- mild to severe for me
sore joints and muscles
sore throat
tremors -- mild -- comes and goes
I went thru the list online for symptoms and checked off mine......very enlightening. I attributed a # of things to normal older age and arthritis. Some were scaring me.
I too cleaned up my diet and went to 90% fresh organic raw fruits and veggies and clean meats. Felt TONS better BUT I still had bad days and I never felt completely well. I maintained that diet for I think about 3 yrs. Then hubby lost his job and we were barely making ends meet so had to go to cheap food again. WOW what a difference. LOTS of my symptoms returned and now I am so bad again that I can't do any type of exerize or I am wiped out.
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