Dear Jane
#11
Yup, been on Benlysta for a year, it's horrifically expensive but we get it free cause we could never afford it. My life has changed dramatically. I suffered without the chemo for over 2 years and finally found a way to get it free(ish) first I have to meet my out of pocket max which is like $3,000 then it's free. I hit that by March. I only hope that they will renew it for 2020 or I degenerate to bed ridden. Your bro should be on the one that takes like 6 hours to get into the system, it's called Rituxamab. I feel awful doing mine and it takes 1 hour, but we spend about three hours in the cancer center. Doc threatened to take me off of Benlysta and switch me to Rituxamab when my numbers shot through the roof a month ago. I'm glad I didn't have to as the side effects from Benlysta keep me in bed for 2 days... the other is worse. That said I have to take a bunch of other drugs for all the rest of the diseases. It's not fun getting old... I always thought I would die by 30 and never need to go through all of this. Good thing I didn't as I wouldn't have my 2 youngest and would have missed out on all sorts of things, quilting included. I was a wild one. :-)
#14
Super Member
Join Date: Aug 2013
Location: Florida
Posts: 5,896
Thanks QuiltingVagabond. I'll give it a try. I've looked in shops but have never scored a copy. Hopefully Amazon will still have it.
#15
Super Member
Join Date: Mar 2010
Location: Ridgefield WA
Posts: 7,765
There is (was?) a wonderful web site when I did mine years ago! Much help, info and pictures Lemme see if I can find it... Yep. Its changed but still really good. And here is mine!
http://thatquilt.blogspot.com/2009/01/8.html
[ATTACH=CONFIG]616462[/ATTACH]
http://thatquilt.blogspot.com/2009/01/8.html
[ATTACH=CONFIG]616462[/ATTACH]
#16
Super Member
Join Date: Oct 2011
Location: South Central Indiana
Posts: 1,931
In April, I was lucky (right place, right time) to be invited to the Jane Stickle Quilt Retreat in Shipshewana. Many of the ladies who attend have completed or are working on DJ. I think the book's author has been a guest speaker for this group which has been meeting for more than 20 years.
Of course, after attending, I needed to find a copy of Dear Jane and mine came today. It was used but in very good condition and had been spiral bound (bonus!!). The next retreat is November, can't wait!
Of course, after attending, I needed to find a copy of Dear Jane and mine came today. It was used but in very good condition and had been spiral bound (bonus!!). The next retreat is November, can't wait!
#20
I was looking for some quilt patterns today and behold! There was Dear Jane. I pulled it off the shelf and said to myself when I am done with my current projects this will be the next thing on my soon to do list. Not just my to do list but very soon. Moved to the top of the list.
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Auntie V
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05-13-2014 09:24 AM